Blog 100 Monday 26th March 2012

Never thought I would have enough to say for 100 blogs!! I've surpassed our Australian Trip with the amount of blogs and visitors. I was thinking that I would have to change the name of this blog from "Living with Bowel Cancer by....... " to "Surviving Bowel Cancer by......" but I have been informed that, officially, you are not a cancer "Survivor" until you are clear and non-recurrences of the disease for 5 years ................. in my last blog I stated that I will always be looking over my shoulder. I'm sure I was thinking along those lines.  I had a discussion some while ago with my hospital ward colleague Michael. Michael was saying that he looks to 3 years then 5 years as a survivor. I'm thinking even 3 years is a long time to think about whether I'm still clear or not, so even if it's in the back of my mind, I shall not attach any length of time. I shall be grateful of all the additional time I have, to see my sons and daughter grow.

Beautiful warm and sunny weather in UK presently, like last year March / April  then we had a rubbish summer. Matthew and girlfriend Timone have landed in Sydney Australia today for a few weeks holiday. Spoke on Free Skype, its a wonderful tool.....  

Blog 99 Friday 23rd March 2012

Contemplating my fathers funeral two days ago, one thing will always stay with me in my thoughts of that day. My fathers coffin was draped in the "Union Flag", I'm not sure why I was surprised, as he fought his way through the 2nd world war in the desert rats. It made me very proud that this was almost a final thank you to him for what he had endured all those years ago. My Dad sometimes enjoyed a Whiskey (or two) and I made sure I had a Whiskey (or two) after his funeral, in the memory of a very great man. Paul McCartney and Wings song "Picasso's last words" came to mind.

The grand old painter died last night
His painting' s on the wall
Before he went, he bade us well
And said goodnight to us all
Drink to me, drink to my health
You know I can't drink any more
Drink to me, drink to my health
You know I can't drink any more

........................................................and finally ...............on our return home; a letter from Mr Ratliff's secretary from  the Three Shires hospital in Northampton was waiting for me. It was concerning my Porta Cath. My Porta Cath will be removed on the 11th April, day surgery and home the same day ..........Yeeeaaaahhhhhhhhhhhhh  !!!!!!!

Blog 98 Friday 16th March 2012

With the passing of Janice in January, my first wife and mother of my three sons,  and the passing of my father this month, the year 2012 so far, has not been good. My news of being given the "All Clear" has been a bit of an anti climax. I am relieved and pleased obviously, but no celebrations. Its Mothers day on Sunday 18th March (In UK) but what must my sons be going through and feeling when they see all the Mothers Day gifts and cards in the shops, and what do I give my mother?, just a few days before my fathers funeral on the 21st March .......... Wendy and I have sent flowers to my mother for Mothers Day as a gesture and we will be thinking of her, but I'm sure she will not be celebrating or thinking of herself.

It is the family wish, that any donations, in place of flowers go to  St Dunstans . Dad was registered blind for a number of years and St Dunstans, which is a charity for visually impaired veterans, helped and supported in many ways.

Tomorrow at 10am,  I visit my Oncologist at the Three Shires in Northampton, hopefully for the last time.. Dr Craig MacMillan has been very good over the course of the last six months chemotherapy.  Arrangements will be made by Dr MacMillan to remove my Porta Cath which will signal the final demise of the Cancer that has invaded me, and finally I can say "I have kicked cancer's butt"......................but I'm sure I will always be looking over my shoulder.        

Blog 97 Tuesday 13th March 2012

I believe this has got to be the ultimate, "I've got good news and bad news" story. I always ask for the "bad news" first when it is presented in this way. The bad news, as Wendy wrote my father passed last Saturday,  I had seen him over the last couple of weeks and had sat by him for a while in his last hours his funeral is Wednesday 21st March.

The "good news" is that my appointment with Mr Waller was all positive and I have been given the all clear from the recent CT scan. My son Jonathan, turned up out of the blue yesterday, and it was nice that he came to the hospital with Wendy and I.

It feels like a weight has been lifted and am able to get on with my life without that dreaded "What If" feeling. Thanks for all the well wishes received and support over the last few months. I would like to continue with the blog and record any cancer related stories and information. I would love to hear from my followers of the blog in the 29 different countries or if you have a related story to tell.     

Blog 96 Saturday 10 March 2012

Wendy's Blog

Sad news, John's dad, my father in law, passed away this morning. Although this was not unexpected it still comes as a shock when you hear the news. Thankfully John went down yesterday so was able to give his support to his mum, sisters and brother. It is never easy saying goodbye to a loved one, but when you see them in pain and suffering it makes it easier to know that they are no longer suffering.

At 93 Vic had been blessed with a wonderful wife who he was married to for 63 years, 5 children, 11 grandchildren and 5 great grand children. He had a wonderful sense of humour and loved to share a whiskey with John. He loved nothing more than having a house full of people and so for many years all family parties where held there. It won't be the same now.

Music by Percy Bysshe Shelley

Music, when soft voices die,
Vibrates in the memory---
Odours, when sweet violets sicken,
Live within the sense they quicken,
Rose leaves, when the rose is dead,
Are heaped for the beloved's bed;
And so thy thoughts, when thou art gone,
Love itself shall slumber on.

We have wonderful memories of a wonderful man. Rest in Peace Dad and Grandad xxxx


Hope's Blog

I'm really sad for my grandad and just to let you know i'm 9years old. I was really upset this morning and I couldn't stop crying. My Grandad was a Husband, Dad, Brother,Great Grandad and Grandad and who ever we were we all loved him for who he was. He's really lucky because he died aged 93 so thats really good but he was in a lot of pain and I'm sure he feels really good now and that he can see and hear properly. I just want to say SORRY!!! Granny and Daddy xx

Blog 95 Thursday 8th March 2012

Only a few days left to the 13th and the results of my scan. Am I superstitious? No,........... I was born on the 13th, and the 13th has been very kind to me over the years! so, "no worries" there. I am however not good at waiting.......................... I shall be spending some time this weekend with my father, as previously mentioned, he is no longer mobile, he sleeps most of the time is not eating much, and only takes small amounts of fluid. He has a mass growing in his stomach, which is believed to be a tumour but will not be attended to due to dads age. From my point of view I would like to know what it is, as every doctor or surgeon that I speak to, asks if there is any cancer in the immediate family,............. I've always replied to  the negative.

Eat well, avoid processed foods, don't stress and be positive.!!

Blog 94 Tuesday 6th March 2012

Yesterday, I attended at The Leicester Spire Hospital for my CT Scan. The CT scan was ordered by my Thoracic Surgeon to confirm, or otherwise that the Chemotherapy has worked! As usual, the back to front gown didn't fit, and a white dressing gown, given to hide my embarrassment, was also a few sizes to small. The staff were not equipped to use  my Porta Cath for the injection of Iodine contrast, so a canulla was fitted in my right arm "Just a small scratch"...............Why do they say that? its not, and it hurts like hell !!! When fitted up with the injection via canulla the machine takes over and injects automatically at the precise time. My thoughts turn to the lethal injection on death row as seen in many US movies, the mechanism must be the same. Why did I think about that ?? It was all over very quickly. Now, a six day wait for the scan results. Today I went for my reflexology by Integrated Cancer Therapies as previously blogged, a charity that caters for cancer patients in  Northamptonshire. Wow what a relaxation!!. and has gone a long way to bringing back the feeling I had lost in the soles of my feet through the side effects of the Chemotherapy.

Blog 93 Friday 2nd March 2012

Only a few days to go before my CT Scan. My Oncologist, Mr MacMillan, is superstitious about removal of my Porta Cath until after the results. I can't wait to have it removed as its starting to bother me. It tends to pull on the vein its connected to in my neck. Its all very hygienic and hidden under the skin, but it does feel a bit like an alien sitting there as its quite a lump!

The Porta Cath

Yesterday, I completed the first training with Bowel Cancer UK's  Claire and Eimear The training session was in Southwark, London SE1. Next session on 21st March.

 I have been amazed at the amount of people I have reached via this blog in 28 different countries! so volunteering for Bowel Cancer UK I will be able to spread the word even further. "Get yourself checked" " If you receive a Bowel Cancer screening test kit USE IT!! do not be one of the 48% that do not send it back !!! see cancer screening nhs remember Early diagnosis is the key!!!!!

Blog 92 Monday 27th February 2012

I have found I have lots more energy this weekend Maybe because its my last Chemo session and I'm on a high. I have completed my forms to volunteer for Bowel Cancer UK and on Saturday helped set up Corby Open, exhibition. After a few hours the old Corby library was transformed, thanks to many volunteers. Sunday, I spent most of the day clearing out the garage ready to repair large sections of roof when the weather gets better. My newly found energy is "All in the mind" as keeping busy is a ploy to winding down the clock before the 5th March, when I attend for my CT Scan. Then a nail biting wait for the results !!  Today I volunteered to spend 3 hours at the Corby Open exhibition, cleaning the windows. I have dates that I am to attend for my Community Awareness  training with Bowel Cancer UK.

Again today, I spoke with a person that, like me, had been mis-diagnosed with Irritable Bowel Syndrome. Its shocking how many people have the same story!!!!  

Blog 91 Thursday 23rd February 2012

I received a call back from my Thoracic Surgeon Mr Waller (Blog 90) He couldn't see me until 29th Feb so I thought I would leave it and see what happens to the pain in my left side and ribs over the next few days . I ended up last night going to the doctor on call service at 23.30. The surgery was full of tired looking Mums, babies and young children. I was eventually seen at 01.00 this morning. The doctor was unable to diagnose the problem and suggested I wait for my CT Scan on 5th March !! I was prescribed pain killers and sent packing a bit of a waste of time, but I've been saying to everyone "Early Diagnosis" is the key !!

Today my Chemotherapy sessions conclude with the removal of the Chemo Folfuser, hopefully for the last time ever, GMT 10.00 am, no celebration until after the scan though. As previously blogged it is imperative that when going through the cancer journey, you stay positive, make plans for the future, keep active and eat healthy. Wendy and I are planning a Road Trip across America for next year East to West Coast !!! Based on our trip around Australia    http://naisbit.blogspot.com/  it should be great fun and will be asking for advice from our blog followers in America, to ensure we see some great "outdoors"

Blog 90 Tuesday 21st February 2012

My Chemotherapy journey started in September 2011 (Blog 36) and here I am contemplating my last session over the next two days I am looking forward to Getting my life back on track as a Cancer Survivor . Since being hooked up this morning I have had enforced sleeps on and off. I have also developed some pain in the left side of my ribs, on the site of my previous (July 2011) chest operation. My nurse in attendance told me to contact Mr Waller my Thoracic surgeon. I am waiting for a call back, as my next appointment with Mr Waller is not until March 13th' I don't feel I should wait. My CT Scan is March 5th (fingers crossed) but the results are not until 13th March at the time of the Mr Waller appointment.  Please check out this website and pass it on its got some good articles on healthy eating for cancer patients, early diagnosis and lots more  http://www.everydayhealth.com/cancer/index.aspx

Wendy's Blog

It is John's last week of chemo, thank goodness for that. When we started on this journey the end looked so far away, quite daunting really. I think it was more the unknown, we have heard all different horror stories about chemo and cancer and it was this that was at the back of our minds.

Well it wasn't as bad as we imagined apart from a short stay in hospital it has been relatively un eventful....fantastic. We have been extremely blessed that it has gone so smoothly and it is in a large part down to John's positive outlook and determination to continue with day to day tasks. Yes he has been tired  and occasionally a bit down but he woke up each day and dealt with each day as they came, with his positive attitude.

I am proud of John and the way he has dealt with this hurdle in his life.....well done love!

Blog 89 Saturday 18th February 2012

Twelfth and final Chemotherapy session starts this week, Tuesday 21st February, I have already had the telephone call from the nurses confirming my appointments for next week for taking bloods and Chemotherapy sessions start times, now looking forward to the end. I can't wait to get to the CT scan following my treatment, I feel my life is a little bit on hold until I get these results.

Wendy was owed some leave, so we have taken a few days out. My father, who is 93 years young is not very well and has confined himself to bed !! so we took the opportunity to visit the south coast for a few days, staying with our friends Bill & Trish (Thanks once again you guys). My father has some kind of mass growing in his stomach but this will not be investigated due to his age. He is quite perky when not sleeping and can still hold a conversation but soon drops of to sleep after. He is being well looked after by my Mum and Sister.

Lots of mentions by people having seen the television campaign for Bowel Cancer it has obviously got the message out there.  I have previously blogged that it is important to keep oneself busy during these times. With this in mind, I recently entered some of my artworks (Pastel & Chalk) into a local request for works to be exhibited in  http://corbyopen.yolasite.com/ originally set up to show local artists work, it was calling for works to be sent for consideration. Out of three submitted, I was successful with one, a picture of a charging elephant !!! inspired by my trip to Addo elephant park in South Africa many years ago. I have also volunteered to help set up the exhibition. It should keep me out of mischief for a few days and pass the time waiting for my scan and surgeon appointment!!!

Blog 88 Friday 10th February 2012

Heavy snow again overnight in the Midlands. Hope and I will be out tobogganing later, after her school. Its school holidays next week so will be looking for things to do for her.. Wendy has ventured into London by train today for a works meeting. I took great delight taking photos of her clearing her car of snow so she can drive to the station. Our Labrador, "Jack" just wants to get out into the white stuff and chase squirrel's. I have finished my penultimate chemotherapy session and feel totally washed out. I have managed to sleep this time which is a bonus!! my head feels full of cotton wool as if I have a heavy cold,  I read somewhere that you never know when a Taurean is sad or depressed, but this week has seen me quite depressed. I'm not sure why. I think I just need some sunshine.
I have booked my free sessions with  Integrated Cancer Therapies reflexology, etc for next Monday. I found out about these free sessions via my nurse. Integrated Cancer Therapies is  a registered charity for cancer sufferers that live in Northamptonshire, perfect!!! Two weeks time my final Chemotherapy session and then CT scan to check how successful the treatment has been.........here's hoping

I have to include this link in my blog as I want everyone to check it out from Cancer research UK please click on the link and watch the video.

Blog 87 Tuesday 7th February 2012

Today is the 11th Chemotherapy session and it is all boringly normal. I have been fitted with the Folfuser Fluorouracil to be infused over the next 46 hours. The warning on the bottle is very clear
"Cytotoxic - handle with care" I am extremely pleased that I have had the opportunity of the Chemotherapy, but boy, will I be glad when it is over! If I can give any advice, for anyone starting on this journey, for the first time, Don't fret, the sessions come around and go very quickly. You will get some or most of the side effects that you will read about, there's lots of information out there of how to deal with this. Take a loved one with you when attending appointments, especially the Oncologist. I got into the habit, of asking the Oncologist to write down the name of drugs, treatments and any information that I didn't understand. I then looked it up on line to understand fully. Stay active and positive...... I have got into a routine of regularly walking the dog, in different locations. I have started a small business, business plan, marketing plan, website, flyer's, business cards, targeting business. All the information is available on-line or library. I have also started to decorate the hallway !!!!! (I was pressurised to do that).
But above all remember each session is doing you good......................and there is a lot of available support out there, write a blog its great hearing from others, join Twitter............... I have learnt there is a lot of people out there far worst of than me.......................

Blog 86 Saturday 4th February 2012

I have recently discovered that anyone suffering from cancer who live in Northamptonshire, can receive free of charge integrated cancer therapy's such as aromatherapy, therapeutic massage, therapeutic touch, reflexology, hypnotherapy and tai chi (chi kung)

Integrated Cancer Therapies is a registered charity specialising in delivering complementary therapy to people with cancer living in Northamptonshire. They are a team of fully qualified and insured therapists with over 25 years collective experience in treating cancer patients. Their purpose is to improve the well-being of people with cancer by providing holistic care using evidence based complementary therapies. The delivery of this service will rely upon charitable funding and voluntary donations. I know where I will be next week !!!! I am secretly hoping that the therapy's will help with the numbness experienced across my left side chest following my lung operation  and the numbness in my feet from the Oxaliplatin drug. I shall also ask about the Tinnitus in my ears since the Oxaliplatin drug.................... Or  I shall just lay back and enjoy !!!  I am hoping by highlighting this service that, maybe, you will have a similar service where you live, for you, or any cancer sufferer that you may know. I'm sure this cannot be unique to Northamptonshire please let me know if you have a similar service, or any other service for cancer sufferers in your City. I will then include any in my blog to assist others. I am starting my 11th and second to last Chemotherapy session next week 7th Feb until 10th Feb. Bloods will be taken on the 6th Feb. Its bitterly cold in Northamptonshire today, last night was reported as minus -10degrees,  and its currently snowing roll on summer!!!!!!!!!! 

Wendy's Blog

I cannot believe that with all the vitamins and berocca that I have been taking to ward off all sickness, so John is not exposed to any bugs, and what happens I get sick! I am full of cold, sneezing, runny eyes, runny nose, cold and miserable. I just hope that John does not get infected, it would be very cruel if he gets sick when he only has two more chemo's to go.

I have a very busy week next week, visits to Birmingham, Grimsby, Manchester and London and then 4 days off the week after next, what to do, it would be nice to get away but John has been stripping the hall way to decorate so I imagine that is what we will be doing!

He likes to potter about the house keeping himself busy. I am pleased that he does not work because  when it gets a bit much he can sleep or just relax. Let us just hope that he doesn't catch what I have got.

Blog 85 Monday 30 January 2012

The trouble with Chemotherapy is that you don't actually know the good its doing, you can only experience the bad through the side effects and symptoms. I can actually feel the harm the drugs are doing to my body, through loss of feeling in my hands and feet, tinnitus in my ears nausea, headaches and constant nose bleeds, but the hope is that the drugs are fighting for you. My friend Michael whom I met in the Spire Leicester hospital, has been through three bouts of 12 sessions of chemotherapy some few years apart, but each time, the cancer has returned in different parts of his body. But It is also about prolonging ones life, which has worked for Michael, he is a very pleasant man with a good sense of humour and is always encouraging and supportive when discussing our situation. I have realised that there are lots of campaigns out there trying to get the message across regarding early diagnosis of cancer it was on the 5 o'clock news today, it is always being featured in the Sunday Papers as individual personal stories. Its in various magazines Corporate and others and as featured in my blog on Saturday its even in the retired policemans magazine !!!! It sounds as if that could be turned into one of those jokes about "The Policemans Ball"

I have often wondered if my years in the Police Service may have contributed to my contracting cancer, eating take away junk on almost every nightshift, quick changeover shifts very little or no sleep with a few pints in between, long hours in police vans and cars, the basic lethargy of the meandering courts system, and the daily stress of witnesing our fellow man destroying himself and others.  

Blog 84 Saturday 28th January 2012

A few blogs ago (Blog 79) I mentioned that the food service industry is spreading the word of healthy eating and I included links to an article on "Poor Diet raises Cancer Risk". The article by Cancer Research UK was based on risks highlighted in the British Journal of Cancer specifically targeting processed foods.

Today, I was very pleased to receive an article from an "old" police chum, Iain. The article had appeared in the NARPO magazine. (National Association of Retired Police Officers) and it included a link to a campaign called "One Click" http://www.bowelcancer.tv/oneclickcampaign/

It is so good to see that, once more, we can spread the word, the article is written by Geoff Stuttaford, the secretary Health & Safety Committee, Police Federation England and Wales. Geoff was invited by Lynn Fauld Wood to attend the House of Lords, for a summit on bowel cancer. Lynn is a cancer survivor and was once a TV presenter for Watchdog. It appears from her story, that Lynn suffered rectal bleeding and was diagnosed as suffering piles. Lynn later found she had bowel cancer at an advanced stage. See Lynns story on You Tube.  As previously blogged, I was diagnosed with "Irritable Bowel Syndrome" and later after colonoscopy discovered I had an advanced stage of bowel cancer which has since spread to my lungs. Once again the story is early diagnosis saves lives

Please click on the "One Click" link above  and than check out  http://info.cancerresearchuk.org/spotcancerearly/cancersignandsymptoms/

Blog 83 Thursday 26th January 2012

Today, Janice said goodbye to everyone, in a fitting tribute to her life. She was the only person smiling  at the St Mary's Church, Lower Heyford congregation. Janice was smiling from the photos, projecting from a screen, of her, meticulously prepared by Jonathan, our eldest son, from her early years, to her teen years and on to motherhood. It was a fitting way to remember her. Janice, the person that had been overwhelmed by cancer, which eventually took her life, was not the same person, smiling down from the screen and will always be remembered in that way, by all, and especially, in the hearts of my sons.

The church was packed with family and friends, George, Jan's dad. Jane, Jan's boss. Anita, Jan's friend from South Africa and Jonathan gave tributes.   The choir sang, and a reading from the bible John 14:1-6 was given spoken by the minister.  Music chosen by Janice "You raise me up" by Josh Groban and Jonathan chose "Another Day in Paradise" by Phil Collins, played. Janice kept smiling throughout the proceedings from the photos being portrayed on the screen and from the, 'order of service' prepared leaflets. Back at the house after the ceremony, quiet reflection.....and a chance to catch up with all the people not seen for many years...............As I left to return home, heavy snow started to fall and stayed with me for my journey. I felt for the family and friends starting their long journeys home.

To my sons.... Your mum wants you to remember her smiling this way and she will always be in your hearts. You should never of experienced this pain at your tender years but it will make you stronger, we all love and support you.............................................Dad x      

Hope's blog

Its really sad that my brothers mummy has passed on but she still lives in our hearts and always will do. Its really hard for me as I am only 9 years of age but we all have to go through those hoops of life. I cried my eyes out when I heard what had happened, I did kind of expect it because I had got told before and then to I was really sad. I'm just glad daddy's all better and wont end up like my brothers mummy.  Love Hope

Blog 82 Tuesday 24th January 2012

Chemo session 10 currently underway, not much I can do apart from write the blog and watch daytime television, occasionally complying with instructions from the nurse and watch the iv slowly do its thing. Its all remarkably uneventful now for the good its doing.  My appointment to the Oncologist last evening was also pretty normal, bloods are good and treatment is going well. Perhaps its because I'm fearing the worst that everything seems a bit dull, or that possibly I'm over these treatments now and can't wait till the twelfth and last one. 

I shall be attending Janice's funeral and celebration of life on Thursday and pray this will bring some closure to my sons. It has not been a good start to 2012 for them and hopefully after Thursday they will be able to look forward once again 

Blog 81 Monday 23rd January 2012

Janice's "Celebration of Life" will be held on Thursday afternoon this week.

This morning I have had two sets of Bloods taken by the nurse from the, at  home service, one set was as a result of my appointment with my Bowel cancer surgeon, El Rabaa last week and the other is the normal set taken prior to my chemotherapy tomorrow. I find it strange in this day and age that the results of one blood test cannot be viewed by the surgeon wanting the same results albeit in different towns but in the same county.

This is my 10th Chemotherapy session, which finishes on Thursday morning . I  have also got an appointment with my Oncologist, Dr MacMillan this afternoon, where I can discuss the Tinnitus, which is still plaguing me after the Oxaliplatin drug was removed, also I seem to be coming out in some weird looking deep purple marks on my skin, which needs to be identified and discussed.

At the end of my chemotherapy in March this year I have the option of keeping, or removing the "Porta Cath"  which has been inserted into my chest especially for the chemotherapy needles. I heard today that if I keep the Porta Cath, I will need the nurse to attend every week to 'flush' the system through.  It may not be my decision, but I would rather have it removed. Dr Ratliff was the surgeon that inserted the Porta Cath at the 'Three Shires Hospital' in Leicester and I assume in consultation with my Oncologist the deciding factor will be with the results of the final CT Scan......... 

Blog 80 Thursday 19th January 2012

At 04.15 today Janice passed away..............my former wife of fifteen years and fantastic mother to my three sons,  has been overwhelmed by cancer, as much as this was expected it is a shock when the news comes of a close friend taken this way. My thoughts are for my sons....................and Janice, who now rests in peace after this battle....................    

Blog 79 Wednesday 18th January 2012

Wendy has been involved in catering for majority of her working life. Some years ago was caught up in the hype, when a certain British Chef highlighted the poor nutritional standards in schools. At this time Wendy was responsible for the catering at 253 primary schools, working for a national company on the south coast and was very aware of the problem, but had already taken great steps to alter the nutritional value of the food being offered. Wendy now is responsible for 15 secondary school catering  contracts and facing ever increasing pressure on budgets, government nutrition and food based standards, sourcing and school councils, whilst trying to improve school meal uptake and deliver catering to strict contract conditions.

Having said all that, I was very pleased to see in Wendy's "Cost Sector Catering"a magazine for the food service industry, an article on processed meats which suggests that it increases the risk of bowel cancer and supports an article on "Poor Diet raises Cancer Risk". This article by Cancer Research UK was based on risks highlighted in the British Journal of Cancer. It reports that nearly half of the cases of cancer diagnosed in the UK each year are caused by our lifestyle choices. It is reported that about 100,000 (34%) of UK Cancers are linked to unhealthy diet, carrying too much weight, smoking and alcohol abuse. We all knew the link between smoking and lung cancer but in breast cancer nearly 10th of the risk comes from being overweight or obese.With gullet cancer, half of the risk comes from eating too little fruit and veg and for stomach cancer the data suggests that too much salt in the diet accounts for a fifth of the risk.

"Leading a healthy lifestyle does not guarantee a person will not get cancer, but the study shows we can significantly stack the odds in our favour" ... Dr Harpal Kumar chief executive of Cancer Research UK.

I'm glad to see the food service industry is also banging on about the importance of healthy lifestyle choices throughout their industry..........................

Blog 78 Saturday 14th January 2012

Yesterday I took my three sons out to a pub lunch in the Oxfordshire countryside, it is very rare that I get the opportunity to have all three boys together as they are always working or have other commitments.  The conversation during lunch was all about their Mum, Janice. Janice is extremely poorly suffering from cancer and the after effects of the chemotherapy regime that she has been subjected to in the past few weeks. Jan's Chemotherapy is no longer working and no longer an option and she has now been moved from the NHS hospital in Oxford to a hospice nearby. From what my sons tell me the hospice offers a much better environment for their mum, than that of the busy hospital ward that she was on. Jan's dad, George and Sue are over from South Africa and her brother, Graham, and Gail are over from Australia. Janice, my sons,  and the family, are aware that the consultants have given a limited time to Janice.......... I feel so sad for all, especially for Janice and my sons enduring this travesty. Wendy and I, have continually offered support to the boys during this last few weeks and was glad of a few hours with them yesterday ..............this is such a difficult and traumatic time for them and all involved.   

Blog 77 Wednesday 11th January 2012

Elated that I am 2nd day into 9th treatment. Sunny and warm in the Midlands. Only had about 2 hours sleep last night which is usual for this stage of treatment. I was concerned at the blood results that came back as my liver function and kidney function tests were the worst since treatment has started, I also developed a pain in the general area of my kidneys. As usual the nurse was onto it straight away and sent the information directly to my Oncologist. Yes Yes Yes I am drinking pints of water to flush the system which is a must during the 48hr toxic drugs infusion.

During my bowel operation the surgeon took photographs of my Liver, Kidneys  and various other organs, including an apparent hernia that I did not know I had. On discussion after the surgery, My surgeon stated I had the Liver of a young man being very healthy looking and beautiful shape and colour, and said that I could start drinking alcohol. Wendy's jaw hit the floor and tore a strip of this young upstart of a surgeon stating her husband does not need any encouragement to drink alcohol!!!!!.
(warning pictures to follow)

I have met several sufferers that have had the cancer go from Bowel to Liver then Lungs for some reason mine missed the Liver ......for now.......... probably because my liver was infused with Cabernet  Sav.

Today I put a link on Twitter to  http://www.oncologynews.biz/latest.html Its got some good articles on Bowel, Breast and Prostate cancer research. It can get a bit Techy in places but behind the doctor speak very informative and shows how clever and committed these surgeons, professor's and doctors
are...........

Hope's blog!!!

Daddy does  alot for me so Iv'e decided to write him a poem shhhhhhhhhhhh.

Daddy daddy cleans all day, he does the dishes and shouts hooray, he goes upstairs and closes the door, he snoozes until half past 4, he comes downstairs feeling nice and bright and I say daddy you slept all night!
                         by Hope

Blog 76 Saturday 7th January 2012

Ninth Chemo session on the 9th. My Ninth session is starting next week and I seem to be flying through them. I will be finished this session on Friday 13th January, then it will be the last two sessions to look forward to. As daunting as the prospect was of  going through Twelve weeks of Chemotherapy, I have found the side effects have been manageable, with all the drugs that have been administered to help. Originally, I found not being able to sleep at night was the worst and the pain of the reflux, both of these and the nausea have been managed well by my Oncologist and nurses. I have had my really bad days and nights and mentally every treatment has been challenging. Wendy has supported me throughout, it would have been very easy to fall into a spiral of "What Ifs"  had it not been for her.

I have taken inspiration from the various articles that I have read and the persons that have contacted me via this blog and Twitter as well as the many well wishers and family prayers. I have a CT Scan arranged towards the end of the treatment in February which I'm hopeful of good news.

Blog 75 Wednesday 4th January 2012

Today has been extremely emotional, unexpected news as a dear friend suffers, so many lives young and old affected, loving family expectations........ dashed and shredded, fears abound, emotions we cannot quantify and thoughts on hold............   

Blog 74 Monday 2nd January 2012

Wendy's Blog

On the 6th January 2004 we said goodbye to our baby that we never knew. Our Angel was cremated at Worthing Crematorium. We lost our baby at 20 weeks, it wasn't until we were going through this that I found out that I new a lot of people that had had miscarriages. It isn't until you are experiencing something that you find out that you are not alone.

John has just read a blog that he found on a follower that has just joined him on twitter. This is about a little boy also with cancer. John doesn't cry very often, and has being quite stoical about what he is going through, but hearing about a child with cancer is something that stirs the deepest emotions.

Hope our daughter, asked me the other day what is my biggest fear, instead of  answering straight away I asked her what hers was? She said "dying". Our nine year old is growing up so quickly by circumstances beyond our control. My answer to her " None of us knows when it will be our time, only the Lord knows that, but we mustn't be scared of dying because when it is our time we will join him in Heaven."

Hope was satisfied with that answer but asked again what mine was......."Not being able to protect you."

I think that is why when you read about a child with cancer your heart breaks!!!

Blog 73 Sunday 1st January 2012

Only yesterday I blogged that I had been incorrectly diagnosed with IBS Irritable Bowel Syndrome. prior to my diagnosis of bowel cancer.

Today an article appeared in the "Mail on Sunday" Review paper, concerning a very brave lady called Judith McGuinness, a mother of two, who in her 50's started getting symptoms not unlike IBS for which she had been diagnosed previously and thought this was another bout. Judith made the mistake of not seeing her GP  on this occasion. Three years later Judith knows she will die from bowel cancer.

Each year 40,000 Britons are diagnosed with Bowel Cancer and the disease claims 16,000 lives. Judith had the symptoms two years before being diagnosed with bowel cancer. I was diagnosed with IBS a lot earlier, and was not offered any follow up from the GP. It was only after a Colonoscopy that Judith after two years was informed that she had T4 cancer . This basically means the cancer had spread to other organs. Bowel cancer can spread anywhere but normally to Liver and Lungs. I had originally been told by the colorectal surgeon that I had T2 stage cancer and did not need chemotherapy as it was unlikely to have spread. Now following an operation for secondary cancer in my lungs confirms it had. Unfortunately Judith had discovered the tumor too late and the cancer has spread to other parts including lungs and liver. Judith has finished off her story by saying Quote ....."I just hope my experience acts as a warning to other IBS sufferers to be aware that changes in their bowel habits could mean they have cancer..." Unquote.............. I whole heartedly endorse that.

It can be seen from my situation and Judith's that age 50's is a critical time. In Scotland everyone gets a test kit at 50 years of age  to test for blood in the stools whilst incredibly you have to wait to 60 years in England or Wales.     Mark Flannagan, chief executive of Beating Bowel Cancer, called on the Government to lower the current screening age from 60 to 50 after a major study found the disease is far more common in men in their early 50s than previously thought................................

Blog 72 Saturday 31st December 2011

Yesterday marked the end of my 8th Chemo session. I was in a forced sleep on and off  most of the day and in a constant state of nausea, despite taking the prescribed anti-nausea drugs. My thoughts yesterday for most of the time was with my sons and their mum Janice. As previously blogged, Janice my first wife is currently going through Chemotherapy and having a very difficult time with the side effects. She has been particularly effected lately, which left her unable to attend my eldest sons wedding reception on Christmas Eve. Thankfully, Janice was able to attend the church service. My sons lives are hectic, all in their 20's work in retail and the long hours that brings. They should not have the added pressure & worry about both their parents fighting cancer. Again, I consider myself lucky I still have both parents my father just celebrated his 93rd birthday !!

I have had a considerable response to my blog in 2011 given the cluster map visitations / locations over 3,000 page reviews and 22 countries and I thank you all for that.

If I can get just one message out there for 2012 it is from my previous blog 55. If you are over 45 years of age,  get yourself checked for bowel cancer,  that's when it started with me, although I was diagnosed incorrectly with Irritable Bowel Syndrome, at this time. Get a colonoscopy!!! Guy's get yer undercarriage checked, Prostate cancer kills a man every hour in the UK !!!! Testicular cancer primarily affects younger men and is the most common form of cancer in men aged between 15 and 44.

Ladies in my blog today and previously I mentioned that my first wife is being seriously effected by cancer this all started in her early fifties this has also devastated my three sons and family. Early diagnosis is vital to effective treatment.

Please check out the interactive  Cancer research UK website for signs and symptoms for early diagnosis.

I am wishing and praying for a Happy and Healthy New Year to you all.

Blog 71 Thursday 29th December 2011

Health-Related Quality of Life Among Long-Term Survivors of Colorectal Cancer: A Population-Based Study - Courtesy of "The Oncolgist" magazine.

Background. The number of long-term colorectal cancer survivors is increasing. Cancer and its treatment can cause physical and psychological complications, but little is known about how it impacts quality of life (QOL) over the long term—5, 10, and 15 years after diagnosis.

Methods. Cancer survivors were randomly selected from three tumor registries in France, diagnosed in 1990 (±1 year), 1995 (±1 year), and 2000 (±1 year). Controls were randomly selected from electoral rolls, stratifying on gender, age group, and residence area. Participants completed two QOL questionnaires, a fatigue questionnaire, an anxiety questionnaire, and a life conditions questionnaire. An analysis of variance was used to compare QOL scores of cancer survivors by period of diagnosis (5, 10, and 15 years) with those of controls.                  

Results. We included 344 colon cancer and 198 rectal cancer survivors and 1,181 controls. In a global analysis, survivors reported a statistically and clinically significant lower score in social functioning 5 years after diagnosis and higher scores in diarrhea symptoms 5 and 10 years after diagnosis. In subgroup analyses, rectal cancer affected QOL in the physical dimensions at 5 years and in the fatigue dimensions at 5 and 10 years.

Conclusion. Survivors of colorectal cancer may experience the effects of cancer and its treatment up to 10 years after diagnosis, particularly for rectal cancer. Clinicians, psychologists, and social workers must pay special attention to rectal cancer survivors to improve overall management...........  How this relates to me is , I had a total of 29cms of my bowel removed which included the colon and rectum I am one of the luckier persons that was saved from having to use a colostomy bag. My quality of life is affected by the continuing diarrhoea  as mentioned above but I have learnt the locations of every public toilet in southern england!!!!!

Chemotherapy started a day later this week due to the Christmas break so I should be finishing today but alas, will not be disconnected until tomorrow about 11am. Woke up at 2am this morning then couldn't sleep. I was getting the normal symptoms, but hey, today is the day all the recycling and rubbish is removed. I set about compacting the recycling of all the Christmas gift boxes and wrapping paper. Removed all the packaging and rubbish that could not be recycled, and completed the composting of the veggies that had not survived. MMmmmmmmm its now 02.45 what next? Now wide awake, I set about clearing up the house (downstairs) whilst the family slept upstairs, dishwasher was thumping away, washing machine churning, dryer tumbling. Its now 03.25 There must be something wrong with the clock! I sent a couple of emails complaining to BHS (British Home Stores) on their on-line returns policy that does not work then I set about reading The Oncologist magazine on-line. Some very interesting articles. I wasn't surprised, when Wendy came down to find out what all the noise was!!!!!!

Blog 70 Monday 26th December 2011

My eldest son Jonathan, got married to Victoria on Christmas Eve this year in Oxfordshire, we had a good but hectic couple of days leading up to the wedding and Christmas. The ceremony was performed by Victoria's uncle Dennis who is a minister at the Biscester Church, it was a lovely occasion. I have previously blogged, that my sons mum; Janice, my first wife, is also fighting cancer.Unfortunately, Janice could only stay for the ceremony, then had to leave as she was feeling just too poorly following her chemotherapy, she was unable to attend the reception but remained in our thoughts. My sons are remaining strong and coping extremely well with both parents enduring this despicable disease and lifesaving chemotherapy. My eighth chemotherapy session starts this week a day late due to Christmas which will take me through to Friday 30th December 2011. We haven't made any plans for new years eve just in case I wont be up to any celebrations. This was the first year that I haven't spent time with my parents on Christmas day, apart for the years I spent in Australia and South Africa, I just couldn't face the six hour round trip. 

I wish all my family, friends and followers a very happy and healthy 2012          

Blog 69 Tuesday 20th December 2011

A good article in the "Mail on Sunday" review newspaper this week, entitled "The Chemo-Proof Christmas Dinner" by Jim Fisher. Jim is a former MasterChef semi finalist and highlights the problems of eating for cancer patients........... for thousands of of us cancer patients, suffering the effects of chemotherapy, the thoughts of the Christmas Dinner, Christmas pud, mince pies and other "Goodies" can be quite daunting, Lifesaving chemotherapy can trigger debilitating severe side effects such as nausea, reflux, and mouth ulcers, also oral mucosities which causes an inflammation of the inside of the mouth making eating very painful. Chemotherapy drugs also wreck taste buds, all this occurs due to the strain placed on the immune system during Chemotherapy. Jim Fisher's late mother, Sylvia, suffered a rare form of cancer and Jim realised, as a chef, he could do something about some of the side effects suffered by his mother.

In my case, I regularly suffer the pain associated with reflux, and often feel quite nausea's,  I currently have mouth ulcers and find it difficult sometimes to swallow cold drinks, due to a feeling that my throat is inflamed. Food often tastes metallic to me and I have lost my appetite for the hot curry's I used to soooooo enjoy. Thoughts of weight loss were replaced with my weight steadily increasing to the heaviest I have ever been, I believe due to the steroids that I am prescribed.

Jim Fisher now runs a cooking school in France, and has researched foods for their comforting and healing properties.  Jim says " Food is more than about having something to eat. It takes you through the bad times. Going through chemo is rotten enough as it is, but it's often especially bad at Christmas.

Jim Fisher has created a festive menu for those especially having chemotherapy " I hope these recipes make it a merrier Christmas for those battling cancer" says Jim.................. www.mailonline.co.uk/chemorecipes
  

Blog 68 Thursday 15th December 2011

This weeks Chemotherapy has been much easier. In my treatment this week  I haven't been given the Magnesium Sulphate, Calcium Gluconate or Oxaliplatin the Magnesium and Calcium are used to assist the process of the the chemo drug Oxaliplatin. I was taken off these due to the Tinitus side effect previously mentioned. I am however still taking the anti sickness drug; Ondansetron and steroids Dexamethasone, Folinic Acid and main chemotherapy drug 5FU Fluorouracil which is taken by IV over 48hours from an attached pump into my chest via a porta Cath. Today this IV is  being removed at 13.30 Yeeaahhh free again. My next session starts on 26th December Boxing Day and yes the nurses have assured me that it will go ahead Christmas and holidays are normal days to them. They are fantastic,  Lets take a minute to applaud the medical profession in its entirety, that will be caring for the people  over this Christmas and new year period.

Blog 67 Monday 12th December 2011

Previously, I have reported that one of my Chemo drugs Oxaliplatin, has given severe side effects which have effected me badly. I expected the side effects and was very prepared to endure them, knowing that the drug was doing me good in the long run. Today, my Oncologist, Dr MacMillan took me off Oxaliplatin for good, the Tinitus suffered was the last straw so to speak. It was explained that, it is not actually known how much Oxaliplatin is actually required with the other Chemo Drug fluorouracil (also known as 5FU) but studies in Glasgow Scotland The SCOT trial has been in operation since 2008 and will run to 2013, the trials are looking into benefits of comparing the Chemotherapy weeks from 24 to 12 weeks and reducing the drug Oxaliplatin and thus the side effects. My blood tests are good today and the white platelets are on the way up again. Looking forward to this weeks Chemo bring on session 7.........

Hope's blog

   and a happy new year!!!

Blog 66 Saturday 10th December 2011

I was amazed that following David Haas guest article on the subject of; health within cancer survivors and patients, last Saturday, this topic was all over the UK morning Sky and BBC news. In my case it seemed  all too easy to "sit around and not do anything" I have dusted off the running machine and still take "Jack" our labrador for long walks through our local Kingswood nature park. My biggest problem is what I eat. Please see the linked article "Top Foods To Eat"

 "Let food be thy medicine and medicine be thy food."-Hippocrates

When you read these Food & Nutrition type articles, you realise that actually, what you are eating are pretty good Cancer fighting foods.

Wendy's Blog

Now if only I can get John to eat tomatoes, they are full of  lycopene. Researchers agree that lycopene has powerful cancer fighting properties, and I believe this whole heartily. He does occasionally eat them but then covers them in a layer of salt...... I might have to get the tin of quality street out and bribe him, a cherry tomato and then a chocolate, I wonder if that will work?

Blog 65 Monday 5th December 2011

David Haas from New York stumbled across my blog and requested a "Guest" appearance

From David Haas
Family Hospitality Coordinator at Mesothelioma Cancer Alliance
Syracuse, New York Area

Exercise and Improved Quality of Life

Surviving cancer is a momentous accomplishment that unfortunately leaves many patients mentally and physically exhausted. For decades, recovering patients were advised to "take it easy" and avoid physical activity. Now, doctors are touting the benefits of exercise for all cancer patients. Adding exercise to your daily post-treatment routine can combat feelings of stress, fatigue and depression to reinvigorate your body, mind and spirit.

Getting Started

Always consult with your doctor before beginning a new exercise regime. Your team of medical professionals can help you create a fitness plan that caters to your needs and abilities. Many cancer patients remain sedentary after treatment due to feelings of depression, stress and exhaustion. Start off slowly and build from there, focusing on progress. Even five minutes a day of activity can improve your well being, so don't pressure yourself to do too much at the beginning. Make a mental commitment to your plan and you will soon feel results.

The Benefits of Exercise

Everyone can benefit from increased activity, but the rewards are even greater for cancer survivors. Daily exercise can elevate your self-confidence, limit feelings of anxiety and depression, boost your immune system, reduce your risk of disease, make you feel less fatigued and elevate your mood. You may even sleep better at night after light to moderate exercise. These factors can combine to improve your quality of life for years to come. Any form of extra physical activity can be viewed as an extension of your treatment that will affect both your mind and body.

Improved survival rates are a great incentive to get moving. The National Cancer Institute maintains that increased physical activity is linked to greater survival rates for those diagnosed with breast, colon, endometrial, lung and prostate cancer. Although it is not a cure, frequent exercise can improve your outlook on life and treatment, lessen your anxiety as you battle the disease and strengthen your body.

Whether you have suffered from mesothelioma, heart, lung or any other type of cancer, talk to your doctor about beginning an exercise regime to take care of your whole body and gain the mental peace you need to continue your journey as a survivor.

Blog 64 Friday 2nd December 2011

Well this session without the Oxaliplatin drug has been much much better virtually no side effects. I have however still got severe Tinitus and have got a further months supply of Lansoprazole for the reflux.
Obviously at this stage I am concerned not having the Oxaliplatin. My treatment involved the two chemotherapy drugs Oxaliplatin and 5FU Fluorouracil  As previously blogged the Chemotherapy is given with a vitamin called folinic acid (Leucovorin) which makes the 5FU more effective.

Oxaliplatin is typically administered with fluorouracil and leucovorin in a combination known as FOLFOX  regime. I was on FolFox 6 regime for the treatment of colorectal cancer. Oxaliplatin has been compared with other platinum compounds (Cisplatin, Carboplatin) in advanced cancers (gastric, ovarian). After the curative resection of colorectal cancer, which I had prior to the cancer spreading to my lungs, chemotherapy based on Fluorouracil and folinic acid reduces the risk of relapse. The benefit is clinically relevant when cancer has spread to locoregional lymph nodes . The addition of Oxaliplatin improves relapse-free survival, but I have learnt that tests are continuing as to how much Oxaliplatin is actually required. Incredibly, It is presently not known, so the normal dose of Oxaliplatin, follows the FolFox regime as to how many cycles of Fluorouracil is administered. Having been taken off Oxaliplatin it may be considered that on my 6th cycle that hopefully I have had sufficient to assist the process.

Blog 63 Tuesday 29th November 2011

Last night 6pm, I had my appointment with Dr Macmillan in Northampton. As normal I was asked about the chemo drug side effect symptoms and severity. I explained one new symptom that had materialised and in fact I should have mentioned it on my last meeting at Halloween but neglected to do so..... Yes probably memory again............... Tinitus......... ( loud ringing in the ears)  it has affected me badly, but I did not consider it a side effect of the Chemotherapy drugs.  I had not been told it a possibility, or read it anywhere..

Dr Macmillan informed me that it was a very unusual and rare side effect, he appeared quite concerned. I was taken off Oxiliplatin drug immediately explaining that it was this drug that was the possible cause and it could lead to total loss of hearing if left. Today I went through all the other drugs and was hooked up to my 48hr IV infusion. So far I feel much better than usual at this stage..........................

I have since found that Ototoxicity is a condition of the ear that can be caused by platinum based drugs (Oxiliplatin falls into this category) I have a further appointment with Dr Macmillan in two weeks time to assess the condition after coming off the drug. I now believe I have suffered every single rare side effect as well as the "normal" side effects............................... a medical conundrum
 co·nun·drum/kəˈnəndrəm/

Noun:

A confusing and difficult problem or question. A question asked for amusement, typically one with a pun in its answer; a riddle.

 Guinea Pig comes to mind.....

Wendy's Blog

I always new he was special and that is why I love him so.....however I have suggested that as he is such a conundrum, maybe he should be donated to science one day?

Blog 62 Friday 25th November 2011

Where has 2011 gone ! Its flown past probably because it's been a very busy year. Monday 28th November I'm seeing my Oncologist Mr McMillan again. It's good being able to speak openly and get answers or possible reasons for things that happen as a consequence of the Chemotherapy.

The cold weather is playing havoc with my face and hands. The cold wind on my face, even during the "OFF" week of chemo still attacks the muscles in my face and I look like one of those size one dogs with a size ten skin ......Shar Pei  I believe. Snow forecast today for Scotland, I certainly will not be playing snow balls this year. Sixth chemo session next week six more to go !! I can't wait to get over this sicky headachy lethargic feeling.

I've started  putting together a business plan and web site for a small business venture, for when this is all over.  It's all come together quite nicely and taken my mind off things, it's also stopped me disturbing Wendy when she works from home.  So much for early retirement.!!     

Blog 61 Tuesday 22nd November 2011

Last Saturday I placed a link on the blog to "Seven Seas Immune Defence Health Oils" I have found them good at increasing my blood count so Chemotherapy can go ahead as planned. If the blood count is low the chemo would be put off for another  week.. Seven Seas is a supplement for  Immune defence, the ingredients pretty standard for this type of product. I found it worked for me and I'm sure anyone fighting with cancer would agree, Its a case of grab hold of anything that gives results or hope............................... I have been contacted by a representative of the Seven Seas product company with a very nice email..........

Quote
"Sadly the Medicines Laws in the UK make it illegal for any supplement company to endorse or mention a product linked to serious conditions like cancer.

Most doctors and cancer specialists tend to give very specific guidance on the use of food supplements, especially during treatments like chemotherapy, so we would strongly suggest that you make your doctor aware of anything you are taking other than medications.

We are very pleased to hear you are finding our product helpful, but must make it clear, we do not endorse the use of any of our supplements during cancer treatments and we cannot be seen to promote our products for this purpose".................................unquote

I can understand the above comments as I'm sure that some unscrupulous companies would make some outrageous claims about their products, which could obviously give false hope. All I'm saying is it works for me !!!!  Hhmmmm I wonder if they have anything for..............................  

Blog 60 Saturday 19th November 2011

6am and wide awake then straight into the regime of taking the tablets. Previously I never thought that I would ever be so reliant on drugs. I hated taking tablets and only just managed the odd aspirin here and there. Today and for the rest of next week, I am off the steroids and anti sickness drugs, however I am still taking Lansoprazole which were given to me after my exit from A&E. These tablets are brilliant, the chemo was giving such severe symptoms of heartburn I thought I was having a mild heart attack. A course of these have sorted it.

I have also found that "Seven Seas" Health Oils Immune Defence tablets have regenerated my white platelets and allowed the Chemotherapy to carry on as normal.  I am also eating loads of oranges etc.

Before taking the Seven Seas Immune defence my bi-weekly blood tests were showing that the white platelets were being destroyed by the chemo at such a rate that every three sessions would have to be postponed. Thanks to the above bolstering my immune system, I believe I will carry on and finish my chemo in March 2012 as planned!!! You can get these at most supermarkets. The results are showing in my blood tests these have also got to be good for you sane people as well!!!! Thanks for reading my blog, double click on the cluster map below to see which countries and city's my ramblings have reached.

  

Blog 59 Thursday 17th November 2011

Just waiting for the nurse to turn up between 3pm and 3.30pm it's 3pm and I'm glad the 5th chemo session is nearly over. Same old same, cant sleep, nausea's etc etc equipment is soon to be detached by the nurse, so at least I will be properly mobile again. Not having to worry about an attached pink bottle on a slightly too short tube, which just so happens to be intravenously injecting 2.5 mls of toxic poison into my body every hour for 48 hours. MMMmmmmmmmmmm. I have gone completely off alcohol, my taste for hot hot curry has diminished, as in I can't take the chili heat any longer, and coffee makes me feel bloated  maybe I'm mistaking old age for chemo side effects!!!!

Blog 58 Monday 14th November 2011

Not sure where the weekend 12th & 13th went, time just flew. Had blood tests this morning and eagerly await the results. If the white platelets are low, as I suspect they will be. I may have to have a blood transfusion, according to the nurse. I think it will just mean that the chemo is deferred a further week. I am sure that blood transfusions are kept, just in case of low blood count and infection. The Lansoprazole as previously mentioned was fantastic immediately got rid of the severe heartburn I was experiencing and to date it hasn't come back.  Do not defer  my chemo I want to finish in March 2012!! Good result for Wendy her colonoscopy came back clear, as I recently reported bowel cancer has effected her family in the past so a great result. 

Later ......................... Yey!! bloods have come back OK so 5th chemo session here we come I really shouldn't be so pessimistic I've been popping some Immune deficiency natural tablets and loads of Vitamin C must have done the job brilliant !!!!!

Blog 57 Wednesday 9th November 2011

Miserable wet and cold days in England now, clocks have gone back to daylight saving, but still dark evenings and mornings. Makes me wonder why we ever moaned at the heat of the southern hemisphere. I had an appointment yesterday with Mr Waller (thoracic surgeon) he has ordered another CT scan towards the end of the chemo. It seems ages away but I'm sure the time will fly. Mr Waller came up with his thoughts of why I had chest pains that saw me at A&E and being admitted to Kettering hospital  Cardio-oesophageal reflex or Acalasia this can cause severe pain in the sternum not unlike a heart attack. A recent blog stated that Gaviscon was my friend, with the prescription that I have been given; Lansoprozole 30mg  hopefully, I will not need the Gaviscon. The above is just another severe side effect of the chemo drug Oxaliplatin and not very pleasant. Only 8 more sessions to go !!!!! Yay. Fingers crossed for next monday when my blood cells are counted to see if my next session will continue. 
 

Blog 56 Friday 4th November 2011

This week has been a sad time for all of us but especially my wife Wendy, as during the week she lost a very dear "Uncle John" suddenly in Bloemfontein South Africa, today is his funeral. Wendy's folks travelled yesterday from Durban, Amanzimtoti to Blom and will read wendy's reminisce out at the funeral. Unfortunately Uncle John never got to meet our daughter Hope.........and we never got to say goodbye..................

End of the fourth chemo session, I've  been sleeping all day, but have managed to get out and take our  dog "Jack" for a walk in the woods. We got our labrador retriever "Jack" last year on Halloween night (Jack O Lantern) so he has been with us exactly a year. Jack seems to know something is wrong and would sit or lay by my side all the time if I let him. Jack still trys to get onto my lap as if he was still a pup (he is now 35kg's)

Warm bright sunshine but menacing black clouds all around. I'm feeling extremely lethargic probably due to the fact that my blood is being destroyed by the Oxaliplatin chemo drug. My white platelets have been reduced from a count of over 200 to less than 88 in 3 sessions, if this continues my next session will be deferred as the platelets will be less than 60 and no match for any infection that waits to invade. I have March 2012 in my mind as the end of the Chemo but if every three or four sessions get deferred I am looking at April or even May. Just got to remember the good that it's doing.

Blog 55 Wednesday 2nd November 2011

Haven't slept at all last night. My connected Folfuser IV fell on the floor twice which pulled on the Porta Cath, I also have quite severe indigestion and heartburn which is a reported side effect ("Gaviscon" is my friend). I am quite nausea's this morning but have yet to take the tablets. I could go on, but I don't want to bore you with the ailments or side effects, especially as certain friends seem to think I have an annul fixation. All I said was get yourself checked for bowel cancer if your over 45 cause thats when it started with me. I don't call that a fixation, get a colonoscopy!!! Guy's get yer undercarraige checked, Prostate cancer kills a man every hour in the UK !!!! Testicular cancer primarily affects younger men and is the most common form of cancer in men aged between 15 and 44.

 Ladies in a previous blog I mentioned that my first wife is being seriously effected by cancer of the ovaries and bowel this all started in her early fifties this has also devastated my three sons and family. Early diagnosis is vital to effective treatment. Please check out the Cancer research UK website for signs and symptoms for early diagnosis.

Wendy's Blog

Got home today to find that the postman had dropped off a lovely padded envelope for me. Excited  until I opened it and found "Kleenprep". Here I thought I had up to 2 months before my colonoscopy and it is Saturday week....... John's turn to laugh at me!!!! The reason why I am going for a colonoscopy is because bowel cancer runs in my family. My mom had 13cm removed from her colon, thankfully she has been clear for 11 years. My Gran also had it as well as a few other family members.
Good thing I can work from home so I know where I will be on the Friday!
Iain looks as if I am going to have an annul fixation for the next couple of weeks!!!

Blog 54 Monday 31st October 2011

Happy Halloween !!

I've had my blood tests this morning in readiness for the chemo starting again tomorrow, this will be the fourth of twelve sessions. Hope is still on half term holiday(incept day) so was very interested when the nurse connected to the Porta Cath, but ran away quickly when the blood was drawn into the phials. My car tax has expired, which normally results in a long wait at the Post Office, luckily this can now be done on-line, I also have an appointment with my Oncologist Dr Macmillan in Northampton, a pumpkin to carve and trick or treating, not to mention Hope's swimming club training tonight. Phew!! lucky I'm semi retired.  The nurse that came to administer the blood tests today was the same nurse that answered my call to the health care at home service 24hr help desk last week ,when I had the chest pains. I cannot speak highly enough of this service and would recommend it to anyone going through Chemo or in fact anything that can be treated at home. We are fortunate enough to have a health care scheme from Wendy's employers that pays for this service. It takes out all the stress of travelling to and from hospital and the waiting that is inevitable involved.  Not looking forward to this weeks nausea and tiredness that is also inevitable.  Tomorrow I will be out of commission all day wired to the iv drips for a total of 56 hours YuuuckK !!

Glad to see the daily visitors on the cluster map from around the world, makes me feel that I'm not actually rambling along talking to myself!!