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Blog 117 Monday 16th July 2012

OK, I need to make some sense of my recent ramblings, so a short synopsis . I developed a severe case of Tinnitus  on my fourth chemotherapy session back in 2011.  I was immediately taken off the chemo drug Oxaliplatin as this was believed to be the cause. My Oncologist Craig Macmillan left notes for my GP that if the Tinnitus does not get better two months after my chemo, I should be referred to an Otolaryngology or ENT Specialist for further investigation.
(Synopsis John synopsis !!!!)

Ok, I had an MRI Scan which was clear of any focal abnormality ie metastases or acoustic neuroma so that's good !!!!! but I have been told that the MRI scan picked up that I have generalised cerebral atrophy (shrinking of the brain) with periventricular ischemic change.

Although this is not uncommon in the older person and is associated with dementia, but in my case described as "possibly slightly more than might be expected in a patient of my age". (55 years) Today my GP gave me a copy of the Radiology report and suggested that I again contact my Oncologist. Just in case  I have also informed the medical insurance people................."Simply Health" they have been very good.......and continue to be sympathetic and supportive.

This is just too weird ! I have received an appointment from the NHS to attend a CT Scan on Wednesday 25th July 2012. It specifically mentions abdominal scan. I telephoned my bowel cancer specialist nurse and spoke with Mark Kingston as this scan is out of sync with what I have recently been told at El-Rabaa surgery. Mark made enquiries and reassured me that in fact this letter is a mistake by the radiology department and should in fact be 25th July 2013 I am a great believer in "everything happens for a reason" or am I just pessimistic. Mark told me to tear the letter up and not go......................

1 comment:

Catherine said...

I'm so glad to hear your insurance company has been supportive - one can hear such different stories. But as you go forward, it's nice that insurance doesn't have to be a stress point.