I was given an appointment with my bowel cancer consultant yesterday which is a normal 6 monthly check and I took the opportunity to ask for the results of my recent MRI Scan ordered by the ear nose and throat specialist. Thankfully I was told the scan results came back clear and the consultant said they were unable to determine the cause of the tinnitus. I was very happy. However the CEA count, which is the cancer marker in my blood, was slightly higher than it has been, so I was sent for further blood tests. I'm not worried by this as when undergoing Chemo my CEA marker was often climbing then dropping but always in the "normal" zone. My consultant asked me to make an appointment with my GP so the results of the scan can be discussed further........... which has been set for next week Monday. The reason why the consultant asked me to make this appointment with the GP is, that apparently she was not qualified to discuss MRI (????????) so be it, a trip to the GP it is then...............
Blog 115 Friday 30th June 2012
My MRI scan was quite eventful, whilst waiting and dressed only in the open backed, blue hospital, gown, an unfortunate sedated soul was wheeled through from the hospital A&E on a hospital bed, and immediately wheeled into the MRI suite, an entourage of doctors followed, this unfortunate soul took my place which I gladly gave up, there is always others worst off than yourself..................
I was therefore quite late going in for my MRI scan compared to my original appointment time. I always get quite claustraphobic whilst being drawn into the machine and always try and think of other things .........this time a song by Pink Floyd, popped into my head, "Welcome to the Machine"
The MRI was a lot louder than I remembered, headphones on and with my panic button in hand it was soon over. My MRI took approximately 30 minutes, and the wait for the results begins...
I was therefore quite late going in for my MRI scan compared to my original appointment time. I always get quite claustraphobic whilst being drawn into the machine and always try and think of other things .........this time a song by Pink Floyd, popped into my head, "Welcome to the Machine"
The MRI was a lot louder than I remembered, headphones on and with my panic button in hand it was soon over. My MRI took approximately 30 minutes, and the wait for the results begins...
Blog 114 Monday 25th June 2012
I have my MRI Scan appointment today at 13.30 GMT. This MRI scan is for my Head and has been ordered by my GP due to my suffering from Tinnitus since the Chemotherapy drug, " Oxaliplatin" was administered back in September last year. I was eventually taken off the drug in December 2011 due to this condition . My hearing has been tested as "Normal" and the MRI is a further test to see if there is anything present that may be causing this condition.
The NHS has come through with a priority appointment as expected. Suddenly all the fears of "What if" come flooding back. My previous MRI scan revealed my bowel cancer had travelled to my lungs, so forgive me for being a bit pessimistic on my appointment today. I joined a very good web site some while ago, where you can discuss any form of fear or pessimism as a sufferer or carer http://www.journeythroughcancer.com/ please check it out its full of good advice or somewhere to connect with others going through the same or similar journeys. An extract from this weeks message. on the journey through cancer web site
"We must build dikes of courage to hold back the flood of fear"
Martin Luther King Jr,
Rick, the author of this site and a Colorectal Cancer Surgeon, tells of a case this week "of a woman diagnosed with cancer 3 years ago but never came to see the oncologist due to fear. Truth of the matter is, she was curable then, but now is not. Trouble is, this isn’t the first time I’ve seen this and probably won’t be the last. I’ve heard that just hearing the “c” word can create such paralytic fear."
“I have a highly developed sense of denial”
At
a recent survivorship celebration a gentleman shared that after 6 year of
survivorship, a counseling session brought out the revelation that his
radiation treatment markings (tattoos) were an all too constant reminder of his
cancer and its treatment. Conventional wisdom would tell us that this is a
classic coping mechanism, denial, getting in the way of somebody actually
addressing the issue. Others may offer that you’ll deal with your issue when
you are ready to deal with it, so denial gives you the space and time needed
until you are ready to cope.
Have
you noticed a time, even many years after the event when denial actually
protected you until you were ready to deal with a painful memory?
The NHS has come through with a priority appointment as expected. Suddenly all the fears of "What if" come flooding back. My previous MRI scan revealed my bowel cancer had travelled to my lungs, so forgive me for being a bit pessimistic on my appointment today. I joined a very good web site some while ago, where you can discuss any form of fear or pessimism as a sufferer or carer http://www.journeythroughcancer.com/ please check it out its full of good advice or somewhere to connect with others going through the same or similar journeys. An extract from this weeks message. on the journey through cancer web site
"We must build dikes of courage to hold back the flood of fear"
Martin Luther King Jr,
Rick, the author of this site and a Colorectal Cancer Surgeon, tells of a case this week "of a woman diagnosed with cancer 3 years ago but never came to see the oncologist due to fear. Truth of the matter is, she was curable then, but now is not. Trouble is, this isn’t the first time I’ve seen this and probably won’t be the last. I’ve heard that just hearing the “c” word can create such paralytic fear."
“I have a highly developed sense of denial”
Gwinneth Paltrow
My message is always the same, Bowel Cancer is curable if caught early enough. Bowel Cancer claims thousands of lives needlessly every year. Visit the Bowel Cancer UK website for some great information.
Blog 113 Wednesday 13th June 2012
I had an appointment at The Corby Diagnostic Centre yesterday. I was seeing the Ear Nose and Throat consultant regarding the Tinnitus I have previously blogged. I became involved with Tinnitus after the fourth chemotherapy session when Tinnitus suddenly effected me, I reported this to my Oncologist and he took me off the Chemo drug Oxaliplatin straight away. It is apparently a very rare side effect of the drug (I've had a few very rare side effects during chemo) I had to go through all the audio tests first before seeing the consultant. After the tests my hearing was reported as "Normal" so why do I continuously tell Wendy to "Turn the TV up"?....................pardon
Having had a thorough examination of my ears, the next stage is to see if anything is causing the problem internally. I was previously warned by the GP that referred me, that I would have an MRI Scan on my head, given the problems I have had with bowel cancer.
The ENT Consultant concluded that I need an MRI scan and this should be through in the next few weeks. Apparently I was treated as a priority case by the consultant that reviewed my referral letter, so hopefully this will continue and I will not have to wait too long for the MRI scan.
Having had a thorough examination of my ears, the next stage is to see if anything is causing the problem internally. I was previously warned by the GP that referred me, that I would have an MRI Scan on my head, given the problems I have had with bowel cancer.
The ENT Consultant concluded that I need an MRI scan and this should be through in the next few weeks. Apparently I was treated as a priority case by the consultant that reviewed my referral letter, so hopefully this will continue and I will not have to wait too long for the MRI scan.
Blog 112 Monday 4th June 2012
Bowel Cancer UK volunteer week 1 - 7 June It was a very nice surprise this week, to get a "Thank you" card, and volunteer certificate, not to mention a decadent bar of chocolate, through the post. It reminded me of the reason that I originally became a volunteer for Bowel Cancer UK. I wanted to tell everyone of my journey through Bowel Cancer then realised that having reached over 40 countries through my blog, my exposure via the Corby Evening Telegraph and Northampton Radio that I could possibly make a difference.
Now I am hoping that I may be able to raise awareness and make people think about the symptoms they may be experiencing in order to prevent to them, what happened to me. I am very lucky, that after all those years, a misdiagnosis, on-going symptoms and two major operations that I have been given the all clear. I caught Bowel Cancer early enough to make the difference. I now understand Bowel Cancer and so should you
Blog 111 Wednesday 30th May2012
Been quite busy lately trying to push my new outlook on life not only have we lost some loved ones early in the year and cancer revisiting my friend Michael our next door neighbour was diagnosed with lung cancer recently and having been taken into hospital due to a collapse was buried two weeks ago. My heart goes out to a very brave lady that I have recently read about. Melanie Swan-Horton a mother of two from Norfolk, took on a high protein diet and had a dramatic weight loss, size 16 to dress size 10 enduring hours in the gym and unfortunately putting her side effects down to her diet regime and gym. Mel has been diagnosed with Bowel Cancer the actual reason for her weight loss. Mel has had chemotherapy and bowel cancer operation but nothing more can be done the cancer has spread to liver and lungs...........................this very brave lady is terminal.
Mel's Quote " Before I die I want every man and woman in Britain to know the signs of bowel cancer. I thought I was getting really slim and fit but it was the cancer killing me and other slimmers need to be aware.’"
Read more: http://www.dailymail.co.uk/health/article-2152134/Woman-dropped-dress-sizes-thought-getting-fit-actually-terminal-cancer.html#ixzz1wNhbBQHt
Bowel Cancer UK has been spreading this message
Mel's Quote " Before I die I want every man and woman in Britain to know the signs of bowel cancer. I thought I was getting really slim and fit but it was the cancer killing me and other slimmers need to be aware.’"
Read more: http://www.dailymail.co.uk/health/article-2152134/Woman-dropped-dress-sizes-thought-getting-fit-actually-terminal-cancer.html#ixzz1wNhbBQHt
Bowel Cancer UK has been spreading this message
BOWEL CANCER: THE FACTS AND THE SYMPTOMS TO LOOK OUT FOR
Bowel cancer affects more than 36,500 people
in the UK every year.
It is the second most common cancer in women - around 18,400 new cases were diagnosed in the UK in 2009.
The biggest single risk factor is age as the chances of having bowel cancer go up after 50.
1 in 10 people are under 50 when they get bowel cancer - Melanie Swan-Horton (featured) is 46.
Early bowel cancer may have no symptoms. Initial symptoms can also occur in people with less serious problems such as haemorrhoid's.
However, the NHS recommends seeing your doctor if you notice the following:
It is the second most common cancer in women - around 18,400 new cases were diagnosed in the UK in 2009.
The biggest single risk factor is age as the chances of having bowel cancer go up after 50.
1 in 10 people are under 50 when they get bowel cancer - Melanie Swan-Horton (featured) is 46.
Early bowel cancer may have no symptoms. Initial symptoms can also occur in people with less serious problems such as haemorrhoid's.
However, the NHS recommends seeing your doctor if you notice the following:
- Blood in your stools or bleeding from the rectum
- A change to normal bowel habits for a number of weeks – such as diarrhoea or constipation, abdominal pain or a lump in the stomach, unexplained weight loss.
- As the disease progresses it can also cause anaemia leading to fatigue and breathlessness.
Blog 110 Tuesday 15th May 2012
Previously back in July last year during my Lung operation I blogged about a very nice chap called "Michael" (read here July 2011 Blog) Michael was having the same operation as me, albeit in one lung only but had severe complications. Today I contacted Michael for a chat and was told by Jean his wife that he has developed cancer in his bladder and has recently been fitted with a catheter. When I met Michael, in hospital at that time, he made my experience in hospital that much better. Michael made me laugh and gave me an opportunity to discuss cancer and chemotherapy for the first time, with someone that had actually gone through it. Michael had been through three bouts of chemo after suffering Bowel Cancer which had also later effected his liver and lung over a twenty year period. Having met Michael briefly during our stay in hospital and later at a consultation again in hospital, I know he will fight this new intrusion and also find time to smile and joke. Our thoughts are with you Michael and Jean.
Blog 109 Sunday 13th May 2012
It is my birthday today and I've been thoroughly spoilt. I have seen or spoken to the majority of my family who have all wished me well.......................................... I can't help thinking; it could have been a lot different. A year ago, I was considering the worst scenario. For it was on the 13th May 2011, a year ago today, I had my CT scan that identified the bowel cancer had now travelled to my lungs. It was just before the scan that the radiologist joked, "Why was I having a scan on my birthday and that I should find better things to do" ..........after the results I could not foresee a future much beyond the immediate. Have faith, Keep faith and Make plans ! that is the best way, I found, to get myself out of the doldrums at that time .
As ever, I keep finding stories to read concerning bowel cancer.
Statins 'cut risk of bowel cancer': Danger 'halved' by cholesterol-busting pills
Read more: http://www.dailymail.co.uk/health/article-2143264/Statins-cut-risk-bowel-cancer-Danger-halved-cholesterol-busting-pills.html#ixzz1umUGjVV5.
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
BE SURE TO READ THE COMMENTS SECTION ............Comments Section by persons on Statins
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
As ever, I keep finding stories to read concerning bowel cancer.
Statins 'cut risk of bowel cancer': Danger 'halved' by cholesterol-busting pills
Read more: http://www.dailymail.co.uk/health/article-2143264/Statins-cut-risk-bowel-cancer-Danger-halved-cholesterol-busting-pills.html#ixzz1umUGjVV5.
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
BE SURE TO READ THE COMMENTS SECTION ............Comments Section by persons on Statins
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Blog 108 Wednesday 9th May 2012
Following my 4th Chemotherapy session back in November 2011, I reported to my Oncologist that I had developed a severe case of Tinnitus . I was immediately taken off the chemotherapy drug Oxaliplatin, as this was believed to be the cause. I was told that the Tinnitus, is a rare and unusual side effect of the Toxic drug Oxaliplatin, but may get better after my chemotherapy treatment ends. If you click on the link to Tinnitus above you will see that Tinnitus can be caused by many things. Cold Plays Chris Martin was in the local paper recently with the same condition He said: Quote "There's no doubt it's been caused by years of being on stage and subjected to very loud decibels of music.". I was told by my Oncologist that I should visit my GP after two months if the symptoms do not get better.
Yesterday I visited my GP, as its been two months, and the ringing in my ears seems worse. The GP didn't hold out much hope of my condition, but said she would refer me to an Ear Nose and Throat specialist,(ENT) but first I would be sent for a head scan....... scans now always worry me.
I read a good article in the Mail on-line this week, and although its not directly about Bowel Cancer it is very interesting and Bowel Cancer UK also advocate a healthy eating regime .The Anti Cancer Diet (Eat Your Way to a Healthier Life) and for all you curry lovers out there please see the next article also from the Mail on-line Curry Favour with your doctor unfortunately with my love of curry over the years it obviously didn't help me, but I'm sure there are some truths in it. Maybe with my love of spices that's why I,m heading towards being a survivor..........
Yesterday I visited my GP, as its been two months, and the ringing in my ears seems worse. The GP didn't hold out much hope of my condition, but said she would refer me to an Ear Nose and Throat specialist,(ENT) but first I would be sent for a head scan....... scans now always worry me.
I read a good article in the Mail on-line this week, and although its not directly about Bowel Cancer it is very interesting and Bowel Cancer UK also advocate a healthy eating regime .The Anti Cancer Diet (Eat Your Way to a Healthier Life) and for all you curry lovers out there please see the next article also from the Mail on-line Curry Favour with your doctor unfortunately with my love of curry over the years it obviously didn't help me, but I'm sure there are some truths in it. Maybe with my love of spices that's why I,m heading towards being a survivor..........
Blog 107 Thursday 3rd May 2012
Today at 2pm I had the pleasure of meeting BBC's John Griff of Northampton Radio and the great experience of being "On Air" in the studio, to discuss my blog and of my journey through Bowel Cancer. As always with the intention of raising awareness of this dreadful disease. You can listen to the interview again.........
HERE with John Griff (its available for the next seven days). Just click on the link!! My interview is straight after Paul Youngs "Come back and stay this time"
HERE with John Griff (its available for the next seven days). Just click on the link!! My interview is straight after Paul Youngs "Come back and stay this time"
Blog 106 Monday 30th April 2012
Spreading the word about Bowel Cancer and as a volunteer for Bowel Cancer UK, I have recently been interviewed by Hannah at "Northants News" my article, "Cancer Survivor Blogs Experiences" can be read Here . I am also going to be interviewed "On Air" by BBC's John Griff this week, John does a great show about local stories and local people.
You can listen to my interview with John Griff "Live" HERE at 2pm GMT on Thursday 3rd May.
The more I hear about people dying from Bowel Cancer, the more I think........ `Surely they experienced some symptoms.......blood in their poo, or a change in bowel habits for a few weeks....... Diarrhoea maybe ...........a pain or a lump in the abdomen extreme tiredness for no reason. It is important to have yourself checked out quickly, or get more info from a trained person at Bowel Cancer UK , 0800 8 40 35 40.
I originally went to my Doctor with some of these symptoms. I was 45 years old at the time. My Doctor sent me away with a diagnosis of Irritable Bowel Syndrome. Mydiagnosis was wrong, Bowel Cancer took hold and started to grow eventually spreading to my lungs.
The UK Government only send out Bowel Cancer screening kits for people between 60 and 69 years old. Fifteen years after my symptoms started would would have been too late for me......... thankfully I am one of the lucky ones, my Bowel Cancer was caught in time......................
You can listen to my interview with John Griff "Live" HERE at 2pm GMT on Thursday 3rd May.
The more I hear about people dying from Bowel Cancer, the more I think........ `Surely they experienced some symptoms.......blood in their poo, or a change in bowel habits for a few weeks....... Diarrhoea maybe ...........a pain or a lump in the abdomen extreme tiredness for no reason. It is important to have yourself checked out quickly, or get more info from a trained person at Bowel Cancer UK , 0800 8 40 35 40.
I originally went to my Doctor with some of these symptoms. I was 45 years old at the time. My Doctor sent me away with a diagnosis of Irritable Bowel Syndrome. Mydiagnosis was wrong, Bowel Cancer took hold and started to grow eventually spreading to my lungs.
The UK Government only send out Bowel Cancer screening kits for people between 60 and 69 years old. Fifteen years after my symptoms started would would have been too late for me......... thankfully I am one of the lucky ones, my Bowel Cancer was caught in time......................
Blog 105 Thursday 26th April 2012
Having blogged my Journey through cancer and my experiences, I said very little of the emotional Physical or Psychological effects on me. On diagnosis I experienced a terrific sense of Sorrow and Sadness, not unlike loosing a loved one, a sudden reality that my future may not be as I had lived to expect. Anger & Resentment, were also emotions I felt at first,...............Depression..... It helped me to stay positive at this time, that doesn't mean you have to feel happy and cheerful it just meant for me, that I acknowledged with the situation and found ways to cope, and even made new plans for the future taking account of my treatments.
I allowed myself at first, not to bother to change out of my PJ's in the morning..... I was being nursed at home, "Why should I"? A sudden bout of reality later kicked in...............I can give up or I can fight..............I chose to fight....... Psychologically, I felt very vulnerable, I was on toxic drugs that were killing my immune defence system. I was told that any sort of virus would see me immediately admitted to hospital. This also gave me feelings of panic and lack of control. My network of family and friends were made aware of this and stayed away for the duration of their colds and flu viruses!! I became extremely tired and submitted to enforced sleeps during the day, resorting to sleeping tablets at night. Again reality later kicked in and I decided to get busy around the house, walk the dog, start painting again, do voluntary work..... It sure helped.
It is all to easy, like me at first to allow the diagnosis of cancer to stop you in your tracks and almost submit to 'Due Process'. Studies on the subject of keeping "Positive" or "Positive Thinking" are not understood and have had mixed results......... In my experience, having endured major bowel surgery for cancer and major lung surgery plus 6 months of chemotherapy, I believe that by staying Positive, Active and discussing openly, my thoughts, and having a sense of "I want this disease out of my system" worked for me .......................There is lots of help and support out there that got me through, like Bowel cancer UK or Macmillan cancer support these sites are full of good information.
Early diagnosis of bowel cancer is the key see "Signs and Symptoms" for early diagnosis.
I allowed myself at first, not to bother to change out of my PJ's in the morning..... I was being nursed at home, "Why should I"? A sudden bout of reality later kicked in...............I can give up or I can fight..............I chose to fight....... Psychologically, I felt very vulnerable, I was on toxic drugs that were killing my immune defence system. I was told that any sort of virus would see me immediately admitted to hospital. This also gave me feelings of panic and lack of control. My network of family and friends were made aware of this and stayed away for the duration of their colds and flu viruses!! I became extremely tired and submitted to enforced sleeps during the day, resorting to sleeping tablets at night. Again reality later kicked in and I decided to get busy around the house, walk the dog, start painting again, do voluntary work..... It sure helped.
It is all to easy, like me at first to allow the diagnosis of cancer to stop you in your tracks and almost submit to 'Due Process'. Studies on the subject of keeping "Positive" or "Positive Thinking" are not understood and have had mixed results......... In my experience, having endured major bowel surgery for cancer and major lung surgery plus 6 months of chemotherapy, I believe that by staying Positive, Active and discussing openly, my thoughts, and having a sense of "I want this disease out of my system" worked for me .......................There is lots of help and support out there that got me through, like Bowel cancer UK or Macmillan cancer support these sites are full of good information.
Early diagnosis of bowel cancer is the key see "Signs and Symptoms" for early diagnosis.
Blog 104 Tuesday 17th April 2012
Today, I have included a copy of Bowel Cancer UK's 25th Anniversary press release and parts of the Executive Summary................... Tomorrow; as part of the Bowel Cancer UK awareness campaign, I am being interviewed by a journalist from "Northants News" who will be reporting on my personal experience with Bowel Cancer.
Embargoed press release: 00:01 Wednesday 18th April 2012
GOVERNMENT COULD CUT BOWEL CANCER DEATHS BY 60% BY 2025 SAYS BOWEL CANCER UK
The Government could cut deaths from bowel cancer by 60% by 2025 if it followed the recommendations in a new report launched today by Bowel Cancer UK. Bowel Cancer UK's ambition is also for an additional 2,500 people with bowel cancer per year living for at least five years after diagnosis by 2025. The report also reveals that more than one in five patients weren’t treated with respect and dignity by doctors and nurses
Bowel cancer is the UK’s second biggest cancer killer, and the overall five-year survival rate of those diagnosed is just over 50% 2. In its report, 2025 Challenge: Saving and Improving Lives, Bowel Cancer UK calls on the Government to examine its targets in reducing mortality, improving patient experience and increasing survival to dramatically improve outcomes in all three areas by 2025.
The report reveals that:
- Deaths from bowel cancer could be cut by 60% by 2025 – from 18 in 100,000 to 7 in 100,000 – if realistic goals were followed.
- Almost one in four patients do not understand doctors’ explanations about their disease, and one in five say that they are not treated with dignity and respect 3.
- 20% of patients say they have received conflicting information about their condition 4.
- Currently, the survival rate of patients with bowel cancer is just over 50%.
Bowel Cancer UK’s ambition is to increase the proportion of people with bowel cancer diagnosed at an early stage, and improve the survival rate of people diagnosed with advanced disease. Achieving these goals would save an additional 2,500 more lives per year by 2025.
Bowel Cancer UK is calling on the Government to improve all three aspects of cancer care by:
- Encouraging greater uptake of screening to ensure earlier diagnosis. Uptake is only just over 50% at the moment
- Improving diagnostic capacity and reducing waiting times to cope with growing demand.
- Detecting and diagnosing bowel cancer at an earlier stage. Currently only 9% of patients in the UK are detected at the very earliest stage of the disease 6.
- Ensuring access to and support in decision making about the best treatments for advanced cancer regardless of where they live.
- Making sure patients receive the best care by ensuring that hospital, community and social care services are joined up.
- Improving the quality and consistency of written information given to patients with bowel cancer – currently one in three patients receive no written information.
Deborah Alsina, CEO, Bowel Cancer UK said: “We want to dramatically improve outcomes for people affected by bowel cancer, minimising the disease’s impact and helping people lead longer, healthier and happier lives.”
“We have a duty to save more lives and the proposals outlined in this report should be the Government’s absolute minimum goal.
“We look forward to working with the government, NHS and other charities to help save more lives from the UK’s second biggest cancer killer.”
About the Bowel Cancer UK ‘2025 Challenge: Saving and Improving Lives’ report:
This report explores the progress over the past 25 years in relation to mortality, survival and patient experience. It celebrates the progress over the last 25 years and identifies the areas where more work is required and establishes realistic goals for improvement by 2025.
Mortality
The past 25 years:
Nearly half a million people in the UK died from bowel cancer in the past 25 years.
Our goal:
An age-standardised mortality rate of 7, meaning 7 people out of a standard population of 100,000 dying from bowel cancer by 2025.
Survival
The past 25 years:
Until recently, the majority of people with bowel cancer had not survived five years after their diagnosis.
Our goal:
An additional 2,500 people with bowel cancer per year living for at least five years after diagnosis by 2025.
Patient experience
The past 25 years:
Overall, cancer patients’ experience of care has improved since 1999, but not in all areas.
Our goal:
All trusts achieving 98% on all key patient experiences measures by 2025.
About Bowel Cancer:
Bowel Cancer is the second most common cause of cancer death in the UK, affecting both men and women. Every year just over 40,000 people are diagnosed with bowel cancer and more than 16,000 people die of the disease.
About Bowel Cancer UK:
Bowel Cancer UK is celebrating its 25th Anniversary. We are a charity aiming to save lives by raising awareness of bowel cancer, campaigning for best treatment and care, and providing practical support and advice.
2. Executive Summary
This report explores progress over the past 25 years on mortality, survival and patient experience. It celebrates the progress that has been made, identifies the areas where more work is required and establishes realistic goals for improvement by 2025.
The projections are made on the basis of what we know about bowel cancer, as well as the progress that has been made in the past. The goals should therefore be seen as a minimum objective for improving bowel cancer outcomes.
Achieving these goals will inform Bowel Cancer UK’s work over the next few years, helping us focus on what matters most to patients. We have developed several calls for action which, when implemented, will help even more people affected by bowel cancer and help us further improve the experience of people with bowel cancer.
Mortality
The past 25 years: Nearly half a million people in the UK died from bowel cancer in the past 25 years Our goal: An age-standardised mortality rate of 7, meaning 7 people out of a standard population of 100,000 dying from bowel cancer by 2025. This would mean that there would have been a 75% reduction in the age standardised mortality rate from 1987. |
Our calls to action
Reducing the number of people who die as a result of bowel cancer will require improvements in prevention, early diagnosis and treatment. We need to:
· Focus on preventing bowel cancer through simple changes to diet and lifestyle as these can reduce someone’s risk of developing bowel cancer.
· Improve diagnostic capacity with short waiting times. Endoscopy capacity should more than double over the next five years to cope with the growing demand created in part by a rise in incidence due to an ageing population.
· Encourage greater uptake of screening as it can prevent cancer for some people and ensure that others are diagnosed at an early stage.
· Implement new screening technologies and develop the next generation of screening tests so that we can maximise the number of cancers prevented and lives saved.
· Investigate the symptoms of bowel cancer. This must involve empowering and supporting GPs to refer people with possible symptoms properly.
· Raise public awareness of bowel cancer so people understand their risk and are motivated to act promptly.
· Ensure consistent best treatment for every patient irrespective of postcode.
Survival
The past 25 years: Until recently, the majority of people with bowel cancer had not survived five years after their diagnosis. Our goal: An additional 2,500 people with bowel cancer per year living for at least five years after diagnosis by 2025. |
Our calls to action
Helping people who are diagnosed with bowel cancer to live longer will require improvements across the patient pathway, ensuring that patients are able to benefit from the best of what we already know, as well as the results of continuing efforts to develop more effective interventions. We need to:
· Detect, diagnose, prevent and manage bowel cancer at the earliest possible stage when interventions are most effective.
· Improve treatment rates and offer the most appropriate treatment for all groups in society. There are currently wide variations in the numbers of patients who are offered a choice of treatment, both across the UK and according to demographic group.
· Ensure access to and support in decision making about the best treatments for advanced cancer. This should be regardless of geographical area as it is now possible to significantly extend and improve quality of life.
· Improve bowel cancer patient safety by using good practice guidance on infection control.
· Help and support people to recover from treatment by developing appropriate services and interventions. This is including for the late effects of treatment.
· Provide high quality palliative care as a vital component to improving the quality of life of cancer patients.
· Improve data collection to understand more about what improves survival as well as why variations in survival occur.
· Continue and prioritise research into bowel cancer as this will have a significant impact on survival by 2025.
Patient Experience
The past 25 years: Overall, cancer patients’ experience of care has improved since 1999, but not in all areas. Our goal: All trusts achieving 98% on all key patient experience measures by 2025. |
Our calls to action
A positive experience of treatment and care should be a minimum standard for every bowel cancer patient. More can and should be done. We need to:
· Expand access to bowel cancer clinical nurse specialists as they have a significant positive impact on the experience of cancer patients.
· Ensure strong multi-disciplinary working to ensure the best interests of the patient which in turn is the key to good patient experience.
· Ensure healthcare professionals communicate effectively and compassionately with patients about their condition and treatment.
· Improve the quality and consistency of written information given to patients with bowel cancer so they feel supported throughout the different stages of their pathway.
· Promote access to specialist supportive services, including diet and nutrition advice and stoma care as this can help with a patient’s experience of treatment and care.
· Ensure that joined up services are shaped around the needs of patients rather than the other way around.
Conclusion
Over the past quarter of a century, the way in which bowel cancer is perceived has been transformed. Public attitudes are changing, awareness is higher, screening offers the opportunity of earlier diagnosis and new treatments have transformed patients’ prospects. Although this is a cause for celebration, we must also remember the half a million people who have lost their lives to bowel cancer in the UK during this period and the many thousands more who have had their quality of life limited by the disease.
Now is not the time for complacency. It is the time to raise our ambitions. This document sets out some challenging but achievable goals for improving every dimension of bowel cancer outcomes, as well as the practical steps that need to be taken to meet them.
Blog 103 Thursday 12th April 2012
All went well yesterday with the removal of the Porta Cath albeit quite painful. As I was in as a day case surgery, the intention is to get the patient out as soon as possible. In less than two minutes my right side chest was shaved, spray frozen, daubed with iodine, and injected with anaesthetic, I was covered almost like a tent and the incision began. within fifteen minutes it was finished and sewn up. With the surgeon's wishes of not wanting to see me again (Meant in the best possible way) I was on my way home. When the anaesthetic wore off , Wow................... trying to sleep was a pain !!!!
Today I was so pleased to read the following article in our local paper for those that have suffered this particular cancer .......................................
NEW WAY TO PREDICT CANCER RETURNING
Researchers have developed a new breast cancer test “that predicts whether or not their breast cancer will return after surgery”, The Daily Telegraph has today reported. The newspaper says the test may mean that thousands of women with a low risk of recurrence could be spared unnecessary chemotherapy.
The story is based on new research that compared an existing method for predicting cancer recurrence, the Oncotype DX recurrence score (RS), and an adapted version that also took other clinical data into account. To test this new method, called the “recurrence score-pathology-clinical assessment” (RSPC), researchers examined long-term study data on 1,444 women with early-stage, hormone-sensitive cancer that had not spread beyond the breast.
The researchers found that under the RSPC model, more patients were classified as being at low risk for disease recurrence compared to the original test. It did not, however, improve the ability to predict which patients would benefit from receiving chemotherapy. As such, the test should be considered “still in development” and not yet ready for use in practice. Its accuracy and ability to guide treatment choices will now need testing prospectively by applying the model to women with breast cancer before treatment and waiting to see if its results later prove to be accurate.
Read the full article HERE
Today I was so pleased to read the following article in our local paper for those that have suffered this particular cancer .......................................
NEW WAY TO PREDICT CANCER RETURNING
Researchers have developed a new breast cancer test “that predicts whether or not their breast cancer will return after surgery”, The Daily Telegraph has today reported. The newspaper says the test may mean that thousands of women with a low risk of recurrence could be spared unnecessary chemotherapy.
The story is based on new research that compared an existing method for predicting cancer recurrence, the Oncotype DX recurrence score (RS), and an adapted version that also took other clinical data into account. To test this new method, called the “recurrence score-pathology-clinical assessment” (RSPC), researchers examined long-term study data on 1,444 women with early-stage, hormone-sensitive cancer that had not spread beyond the breast.
The researchers found that under the RSPC model, more patients were classified as being at low risk for disease recurrence compared to the original test. It did not, however, improve the ability to predict which patients would benefit from receiving chemotherapy. As such, the test should be considered “still in development” and not yet ready for use in practice. Its accuracy and ability to guide treatment choices will now need testing prospectively by applying the model to women with breast cancer before treatment and waiting to see if its results later prove to be accurate.
Read the full article HERE
Blog 102 Tuesday 10th April 2012
Finally ......................I will be attending The Three Shires Hospital in Cliftonville Northampton tomorrow at 13.50 to remove the Porta Cath in my chest. The Porta Cath is a wonderful device is inserted completely under the skin via surgery and takes the Chemotherapy drugs without fear of infection. It can take approximately 1000 injections before it needs replacing. I have been very fortunate having my Chemo at home via the above it made it all so easy. Having said that I haven't really got on with it, Its become quite sore and irritating especially when trying to sleep.The last remnants reminding me of the cancer and a journey that has lasted almost three years. My consultant for tomorrow is David A Ratliff MD FRCP FRCS Vascular, Laparoscopic and Endocrine Surgeon. My son Matthew & his galfriend Timone are safely back from Australia and will be driving me to/from hospital. I'm warned no driving for 48hours after the surgery............Brilliant !!!!!!Wendy will have to drive when we visit our friends Iain & Myra next weekend.
Blog 101 Wednesday 4th April 2012
Anyone who has previously read this blog will know, I have volunteered for Bowel Cancer UK. Unfortunately I missed the 2nd training session due to the recent loss of my father. Bowel Cancer UK volunteers attend events and give talks to raise awareness of Bowel Cancer, using statistics, symptoms, risk factors, and prevention. The volunteer is armed with leaflets with loads of information for good bowel health and also on the UK's screening programme. Bowel Cancer UK give you the facts about bowel cancer Telephone 0800 8 40 34 40 If, like me you are diagnosed early, bowel cancer is very treatable. What you must look out for is :-)
(1) Bleeding from your bottom and or blood in your poo. (2) A change in your bowel habits, lasting three weeks or more. (3) Unexplained weight loss. (4) Extreme tiredness for no reason. (5) A pain or lump in your tummy.
In my experience, I only had one of the above symptoms being, a change in my bowel habits. I had diarrhoea, which my doctor wrongly diagnosed as Irritable bowel syndrome. It still makes me angry, because, apparently I didn't fit the "profile" of someone that could have the early signs of cancer. (I was too young at 46) , my doctor at the time didn't bother with further tests. It took a doctor in Australia when we emigrated, to take things further and finally diagnose the disease.
Bowel Cancer UK warns of eating too much processed foods, ie bacon, ham,salami, sausages and burgers, and suggests that we should eat them as a treat only, as these foods could lead to bowel cancer. Studies from Sweden, also show that just 50grams of processed meat a day raises the risk of pancreatic cancer by a fifth. SO!!!!!!! I was amazed to read in
the Mail on Sunday "Review" paper that "Bacon can be good for you" by Zoe Dare HALL.
Be sure to read the bit that says buy "Good-Quality Sausages" "Made from Outdoor-Reared", "Toxin-Free Pork" and which contain "90 per cent pork meat". I'm sorry, but like the majority of British people, I do not shop at Harrods for my sausages !!! and reading the fine print on sausage packaging from supermarkets is becoming evermore problematic for me with age!!!!!
Zoe Dare HALL also quotes Rachel Green, of BBC3’s Kill It, Cook It, Eat It, who suggests that we buy from Farm Shops. Rachel says ..."I like to use more mature, flavoursome rare-breed porks such as Gloucestershire Old Spot or Tamworth." We do not have the luxury of a farm shop selling such high end sausages in our area, but Zoe, I will try in Tesco and Morrisons for a laugh!!!!!!! I believe its headlines like that above that causes confusion amongst the majority and aimed at the minority who are demographically privileged.
(1) Bleeding from your bottom and or blood in your poo. (2) A change in your bowel habits, lasting three weeks or more. (3) Unexplained weight loss. (4) Extreme tiredness for no reason. (5) A pain or lump in your tummy.
In my experience, I only had one of the above symptoms being, a change in my bowel habits. I had diarrhoea, which my doctor wrongly diagnosed as Irritable bowel syndrome. It still makes me angry, because, apparently I didn't fit the "profile" of someone that could have the early signs of cancer. (I was too young at 46) , my doctor at the time didn't bother with further tests. It took a doctor in Australia when we emigrated, to take things further and finally diagnose the disease.
Bowel Cancer UK warns of eating too much processed foods, ie bacon, ham,salami, sausages and burgers, and suggests that we should eat them as a treat only, as these foods could lead to bowel cancer. Studies from Sweden, also show that just 50grams of processed meat a day raises the risk of pancreatic cancer by a fifth. SO!!!!!!! I was amazed to read in
the Mail on Sunday "Review" paper that "Bacon can be good for you" by Zoe Dare HALL.
Be sure to read the bit that says buy "Good-Quality Sausages" "Made from Outdoor-Reared", "Toxin-Free Pork" and which contain "90 per cent pork meat". I'm sorry, but like the majority of British people, I do not shop at Harrods for my sausages !!! and reading the fine print on sausage packaging from supermarkets is becoming evermore problematic for me with age!!!!!
Zoe Dare HALL also quotes Rachel Green, of BBC3’s Kill It, Cook It, Eat It, who suggests that we buy from Farm Shops. Rachel says ..."I like to use more mature, flavoursome rare-breed porks such as Gloucestershire Old Spot or Tamworth." We do not have the luxury of a farm shop selling such high end sausages in our area, but Zoe, I will try in Tesco and Morrisons for a laugh!!!!!!! I believe its headlines like that above that causes confusion amongst the majority and aimed at the minority who are demographically privileged.
Blog 100 Monday 26th March 2012
Never thought I would have enough to say for 100 blogs!! I've surpassed our Australian Trip with the amount of blogs and visitors. I was thinking that I would have to change the name of this blog from "Living with Bowel Cancer by....... " to "Surviving Bowel Cancer by......" but I have been informed that, officially, you are not a cancer "Survivor" until you are clear and non-recurrences of the disease for 5 years ................. in my last blog I stated that I will always be looking over my shoulder. I'm sure I was thinking along those lines. I had a discussion some while ago with my hospital ward colleague Michael. Michael was saying that he looks to 3 years then 5 years as a survivor. I'm thinking even 3 years is a long time to think about whether I'm still clear or not, so even if it's in the back of my mind, I shall not attach any length of time. I shall be grateful of all the additional time I have, to see my sons and daughter grow.
Beautiful warm and sunny weather in UK presently, like last year March / April then we had a rubbish summer. Matthew and girlfriend Timone have landed in Sydney Australia today for a few weeks holiday. Spoke on Free Skype, its a wonderful tool.....
Beautiful warm and sunny weather in UK presently, like last year March / April then we had a rubbish summer. Matthew and girlfriend Timone have landed in Sydney Australia today for a few weeks holiday. Spoke on Free Skype, its a wonderful tool.....
Blog 99 Friday 23rd March 2012
Contemplating my fathers funeral two days ago, one thing will always stay with me in my thoughts of that day. My fathers coffin was draped in the "Union Flag", I'm not sure why I was surprised, as he fought his way through the 2nd world war in the desert rats. It made me very proud that this was almost a final thank you to him for what he had endured all those years ago. My Dad sometimes enjoyed a Whiskey (or two) and I made sure I had a Whiskey (or two) after his funeral, in the memory of a very great man. Paul McCartney and Wings song "Picasso's last words" came to mind.
The grand old painter died last night
His painting' s on the wall
Before he went, he bade us well
And said goodnight to us all
Drink to me, drink to my health
You know I can't drink any more
Drink to me, drink to my health
You know I can't drink any more
........................................................and finally ...............on our return home; a letter from Mr Ratliff's secretary from the Three Shires hospital in Northampton was waiting for me. It was concerning my Porta Cath. My Porta Cath will be removed on the 11th April, day surgery and home the same day ..........Yeeeaaaahhhhhhhhhhhhh !!!!!!!
The grand old painter died last night
His painting' s on the wall
Before he went, he bade us well
And said goodnight to us all
Drink to me, drink to my health
You know I can't drink any more
Drink to me, drink to my health
You know I can't drink any more
........................................................and finally ...............on our return home; a letter from Mr Ratliff's secretary from the Three Shires hospital in Northampton was waiting for me. It was concerning my Porta Cath. My Porta Cath will be removed on the 11th April, day surgery and home the same day ..........Yeeeaaaahhhhhhhhhhhhh !!!!!!!
Blog 98 Friday 16th March 2012
With the passing of Janice in January, my first wife and mother of my three sons, and the passing of my father this month, the year 2012 so far, has not been good. My news of being given the "All Clear" has been a bit of an anti climax. I am relieved and pleased obviously, but no celebrations. Its Mothers day on Sunday 18th March (In UK) but what must my sons be going through and feeling when they see all the Mothers Day gifts and cards in the shops, and what do I give my mother?, just a few days before my fathers funeral on the 21st March .......... Wendy and I have sent flowers to my mother for Mothers Day as a gesture and we will be thinking of her, but I'm sure she will not be celebrating or thinking of herself.
It is the family wish, that any donations, in place of flowers go to St Dunstans . Dad was registered blind for a number of years and St Dunstans, which is a charity for visually impaired veterans, helped and supported in many ways.
Tomorrow at 10am, I visit my Oncologist at the Three Shires in Northampton, hopefully for the last time.. Dr Craig MacMillan has been very good over the course of the last six months chemotherapy. Arrangements will be made by Dr MacMillan to remove my Porta Cath which will signal the final demise of the Cancer that has invaded me, and finally I can say "I have kicked cancer's butt"......................but I'm sure I will always be looking over my shoulder.
It is the family wish, that any donations, in place of flowers go to St Dunstans . Dad was registered blind for a number of years and St Dunstans, which is a charity for visually impaired veterans, helped and supported in many ways.
Tomorrow at 10am, I visit my Oncologist at the Three Shires in Northampton, hopefully for the last time.. Dr Craig MacMillan has been very good over the course of the last six months chemotherapy. Arrangements will be made by Dr MacMillan to remove my Porta Cath which will signal the final demise of the Cancer that has invaded me, and finally I can say "I have kicked cancer's butt"......................but I'm sure I will always be looking over my shoulder.
Blog 97 Tuesday 13th March 2012
I believe this has got to be the ultimate, "I've got good news and bad news" story. I always ask for the "bad news" first when it is presented in this way. The bad news, as Wendy wrote my father passed last Saturday, I had seen him over the last couple of weeks and had sat by him for a while in his last hours his funeral is Wednesday 21st March.
The "good news" is that my appointment with Mr Waller was all positive and I have been given the all clear from the recent CT scan. My son Jonathan, turned up out of the blue yesterday, and it was nice that he came to the hospital with Wendy and I.
It feels like a weight has been lifted and am able to get on with my life without that dreaded "What If" feeling. Thanks for all the well wishes received and support over the last few months. I would like to continue with the blog and record any cancer related stories and information. I would love to hear from my followers of the blog in the 29 different countries or if you have a related story to tell.
The "good news" is that my appointment with Mr Waller was all positive and I have been given the all clear from the recent CT scan. My son Jonathan, turned up out of the blue yesterday, and it was nice that he came to the hospital with Wendy and I.
It feels like a weight has been lifted and am able to get on with my life without that dreaded "What If" feeling. Thanks for all the well wishes received and support over the last few months. I would like to continue with the blog and record any cancer related stories and information. I would love to hear from my followers of the blog in the 29 different countries or if you have a related story to tell.
Blog 96 Saturday 10 March 2012
Wendy's Blog
Sad news, John's dad, my father in law, passed away this morning. Although this was not unexpected it still comes as a shock when you hear the news. Thankfully John went down yesterday so was able to give his support to his mum, sisters and brother. It is never easy saying goodbye to a loved one, but when you see them in pain and suffering it makes it easier to know that they are no longer suffering.
At 93 Vic had been blessed with a wonderful wife who he was married to for 63 years, 5 children, 11 grandchildren and 5 great grand children. He had a wonderful sense of humour and loved to share a whiskey with John. He loved nothing more than having a house full of people and so for many years all family parties where held there. It won't be the same now.
Music by Percy Bysshe Shelley
Music, when soft voices die,
Vibrates in the memory---
Odours, when sweet violets sicken,
Live within the sense they quicken,
Rose leaves, when the rose is dead,
Are heaped for the beloved's bed;
And so thy thoughts, when thou art gone,
Love itself shall slumber on.
We have wonderful memories of a wonderful man. Rest in Peace Dad and Grandad xxxx
Hope's Blog
I'm really sad for my grandad and just to let you know i'm 9years old. I was really upset this morning and I couldn't stop crying. My Grandad was a Husband, Dad, Brother,Great Grandad and Grandad and who ever we were we all loved him for who he was. He's really lucky because he died aged 93 so thats really good but he was in a lot of pain and I'm sure he feels really good now and that he can see and hear properly. I just want to say SORRY!!! Granny and Daddy xx
Sad news, John's dad, my father in law, passed away this morning. Although this was not unexpected it still comes as a shock when you hear the news. Thankfully John went down yesterday so was able to give his support to his mum, sisters and brother. It is never easy saying goodbye to a loved one, but when you see them in pain and suffering it makes it easier to know that they are no longer suffering.
At 93 Vic had been blessed with a wonderful wife who he was married to for 63 years, 5 children, 11 grandchildren and 5 great grand children. He had a wonderful sense of humour and loved to share a whiskey with John. He loved nothing more than having a house full of people and so for many years all family parties where held there. It won't be the same now.
Music by Percy Bysshe Shelley
Music, when soft voices die,
Vibrates in the memory---
Odours, when sweet violets sicken,
Live within the sense they quicken,
Rose leaves, when the rose is dead,
Are heaped for the beloved's bed;
And so thy thoughts, when thou art gone,
Love itself shall slumber on.
We have wonderful memories of a wonderful man. Rest in Peace Dad and Grandad xxxx
Hope's Blog
I'm really sad for my grandad and just to let you know i'm 9years old. I was really upset this morning and I couldn't stop crying. My Grandad was a Husband, Dad, Brother,Great Grandad and Grandad and who ever we were we all loved him for who he was. He's really lucky because he died aged 93 so thats really good but he was in a lot of pain and I'm sure he feels really good now and that he can see and hear properly. I just want to say SORRY!!! Granny and Daddy xx
Blog 95 Thursday 8th March 2012
Only a few days left to the 13th and the results of my scan. Am I superstitious? No,........... I was born on the 13th, and the 13th has been very kind to me over the years! so, "no worries" there. I am however not good at waiting.......................... I shall be spending some time this weekend with my father, as previously mentioned, he is no longer mobile, he sleeps most of the time is not eating much, and only takes small amounts of fluid. He has a mass growing in his stomach, which is believed to be a tumour but will not be attended to due to dads age. From my point of view I would like to know what it is, as every doctor or surgeon that I speak to, asks if there is any cancer in the immediate family,............. I've always replied to the negative.
Eat well, avoid processed foods, don't stress and be positive.!!
Eat well, avoid processed foods, don't stress and be positive.!!
Blog 94 Tuesday 6th March 2012
Yesterday, I attended at The Leicester Spire Hospital for my CT Scan. The CT scan was ordered by my Thoracic Surgeon to confirm, or otherwise that the Chemotherapy has worked! As usual, the back to front gown didn't fit, and a white dressing gown, given to hide my embarrassment, was also a few sizes to small. The staff were not equipped to use my Porta Cath for the injection of Iodine contrast, so a canulla was fitted in my right arm "Just a small scratch"...............Why do they say that? its not, and it hurts like hell !!! When fitted up with the injection via canulla the machine takes over and injects automatically at the precise time. My thoughts turn to the lethal injection on death row as seen in many US movies, the mechanism must be the same. Why did I think about that ?? It was all over very quickly. Now, a six day wait for the scan results. Today I went for my reflexology by Integrated Cancer Therapies as previously blogged, a charity that caters for cancer patients in Northamptonshire. Wow what a relaxation!!. and has gone a long way to bringing back the feeling I had lost in the soles of my feet through the side effects of the Chemotherapy.
Blog 93 Friday 2nd March 2012
Only a few days to go before my CT Scan. My Oncologist, Mr MacMillan, is superstitious about removal of my Porta Cath until after the results. I can't wait to have it removed as its starting to bother me. It tends to pull on the vein its connected to in my neck. Its all very hygienic and hidden under the skin, but it does feel a bit like an alien sitting there as its quite a lump!
The Porta Cath
Yesterday, I completed the first training with Bowel Cancer UK's Claire and Eimear The training session was in Southwark, London SE1. Next session on 21st March.
I have been amazed at the amount of people I have reached via this blog in 28 different countries! so volunteering for Bowel Cancer UK I will be able to spread the word even further. "Get yourself checked" " If you receive a Bowel Cancer screening test kit USE IT!! do not be one of the 48% that do not send it back !!! see cancer screening nhs remember Early diagnosis is the key!!!!!
The Porta Cath
Yesterday, I completed the first training with Bowel Cancer UK's Claire and Eimear The training session was in Southwark, London SE1. Next session on 21st March.
I have been amazed at the amount of people I have reached via this blog in 28 different countries! so volunteering for Bowel Cancer UK I will be able to spread the word even further. "Get yourself checked" " If you receive a Bowel Cancer screening test kit USE IT!! do not be one of the 48% that do not send it back !!! see cancer screening nhs remember Early diagnosis is the key!!!!!
Blog 92 Monday 27th February 2012
I have found I have lots more energy this weekend Maybe because its my last Chemo session and I'm on a high. I have completed my forms to volunteer for Bowel Cancer UK and on Saturday helped set up Corby Open, exhibition. After a few hours the old Corby library was transformed, thanks to many volunteers. Sunday, I spent most of the day clearing out the garage ready to repair large sections of roof when the weather gets better. My newly found energy is "All in the mind" as keeping busy is a ploy to winding down the clock before the 5th March, when I attend for my CT Scan. Then a nail biting wait for the results !! Today I volunteered to spend 3 hours at the Corby Open exhibition, cleaning the windows. I have dates that I am to attend for my Community Awareness training with Bowel Cancer UK.
Again today, I spoke with a person that, like me, had been mis-diagnosed with Irritable Bowel Syndrome. Its shocking how many people have the same story!!!!
Again today, I spoke with a person that, like me, had been mis-diagnosed with Irritable Bowel Syndrome. Its shocking how many people have the same story!!!!
Blog 91 Thursday 23rd February 2012
I received a call back from my Thoracic Surgeon Mr Waller (Blog 90) He couldn't see me until 29th Feb so I thought I would leave it and see what happens to the pain in my left side and ribs over the next few days . I ended up last night going to the doctor on call service at 23.30. The surgery was full of tired looking Mums, babies and young children. I was eventually seen at 01.00 this morning. The doctor was unable to diagnose the problem and suggested I wait for my CT Scan on 5th March !! I was prescribed pain killers and sent packing a bit of a waste of time, but I've been saying to everyone "Early Diagnosis" is the key !!
Today my Chemotherapy sessions conclude with the removal of the Chemo Folfuser, hopefully for the last time ever, GMT 10.00 am, no celebration until after the scan though. As previously blogged it is imperative that when going through the cancer journey, you stay positive, make plans for the future, keep active and eat healthy. Wendy and I are planning a Road Trip across America for next year East to West Coast !!! Based on our trip around Australia http://naisbit.blogspot.com/ it should be great fun and will be asking for advice from our blog followers in America, to ensure we see some great "outdoors"
Today my Chemotherapy sessions conclude with the removal of the Chemo Folfuser, hopefully for the last time ever, GMT 10.00 am, no celebration until after the scan though. As previously blogged it is imperative that when going through the cancer journey, you stay positive, make plans for the future, keep active and eat healthy. Wendy and I are planning a Road Trip across America for next year East to West Coast !!! Based on our trip around Australia http://naisbit.blogspot.com/ it should be great fun and will be asking for advice from our blog followers in America, to ensure we see some great "outdoors"
Blog 90 Tuesday 21st February 2012
My Chemotherapy journey started in September 2011 (Blog 36) and here I am contemplating my last session over the next two days I am looking forward to Getting my life back on track as a Cancer Survivor . Since being hooked up this morning I have had enforced sleeps on and off. I have also developed some pain in the left side of my ribs, on the site of my previous (July 2011) chest operation. My nurse in attendance told me to contact Mr Waller my Thoracic surgeon. I am waiting for a call back, as my next appointment with Mr Waller is not until March 13th' I don't feel I should wait. My CT Scan is March 5th (fingers crossed) but the results are not until 13th March at the time of the Mr Waller appointment. Please check out this website and pass it on its got some good articles on healthy eating for cancer patients, early diagnosis and lots more http://www.everydayhealth.com/cancer/index.aspx
Wendy's Blog
It is John's last week of chemo, thank goodness for that. When we started on this journey the end looked so far away, quite daunting really. I think it was more the unknown, we have heard all different horror stories about chemo and cancer and it was this that was at the back of our minds.
Well it wasn't as bad as we imagined apart from a short stay in hospital it has been relatively un eventful....fantastic. We have been extremely blessed that it has gone so smoothly and it is in a large part down to John's positive outlook and determination to continue with day to day tasks. Yes he has been tired and occasionally a bit down but he woke up each day and dealt with each day as they came, with his positive attitude.
I am proud of John and the way he has dealt with this hurdle in his life.....well done love!
Wendy's Blog
It is John's last week of chemo, thank goodness for that. When we started on this journey the end looked so far away, quite daunting really. I think it was more the unknown, we have heard all different horror stories about chemo and cancer and it was this that was at the back of our minds.
Well it wasn't as bad as we imagined apart from a short stay in hospital it has been relatively un eventful....fantastic. We have been extremely blessed that it has gone so smoothly and it is in a large part down to John's positive outlook and determination to continue with day to day tasks. Yes he has been tired and occasionally a bit down but he woke up each day and dealt with each day as they came, with his positive attitude.
I am proud of John and the way he has dealt with this hurdle in his life.....well done love!
Blog 89 Saturday 18th February 2012
Twelfth and final Chemotherapy session starts this week, Tuesday 21st February, I have already had the telephone call from the nurses confirming my appointments for next week for taking bloods and Chemotherapy sessions start times, now looking forward to the end. I can't wait to get to the CT scan following my treatment, I feel my life is a little bit on hold until I get these results.
Wendy was owed some leave, so we have taken a few days out. My father, who is 93 years young is not very well and has confined himself to bed !! so we took the opportunity to visit the south coast for a few days, staying with our friends Bill & Trish (Thanks once again you guys). My father has some kind of mass growing in his stomach but this will not be investigated due to his age. He is quite perky when not sleeping and can still hold a conversation but soon drops of to sleep after. He is being well looked after by my Mum and Sister.
Lots of mentions by people having seen the television campaign for Bowel Cancer it has obviously got the message out there. I have previously blogged that it is important to keep oneself busy during these times. With this in mind, I recently entered some of my artworks (Pastel & Chalk) into a local request for works to be exhibited in http://corbyopen.yolasite.com/ originally set up to show local artists work, it was calling for works to be sent for consideration. Out of three submitted, I was successful with one, a picture of a charging elephant !!! inspired by my trip to Addo elephant park in South Africa many years ago. I have also volunteered to help set up the exhibition. It should keep me out of mischief for a few days and pass the time waiting for my scan and surgeon appointment!!!
Wendy was owed some leave, so we have taken a few days out. My father, who is 93 years young is not very well and has confined himself to bed !! so we took the opportunity to visit the south coast for a few days, staying with our friends Bill & Trish (Thanks once again you guys). My father has some kind of mass growing in his stomach but this will not be investigated due to his age. He is quite perky when not sleeping and can still hold a conversation but soon drops of to sleep after. He is being well looked after by my Mum and Sister.
Lots of mentions by people having seen the television campaign for Bowel Cancer it has obviously got the message out there. I have previously blogged that it is important to keep oneself busy during these times. With this in mind, I recently entered some of my artworks (Pastel & Chalk) into a local request for works to be exhibited in http://corbyopen.yolasite.com/ originally set up to show local artists work, it was calling for works to be sent for consideration. Out of three submitted, I was successful with one, a picture of a charging elephant !!! inspired by my trip to Addo elephant park in South Africa many years ago. I have also volunteered to help set up the exhibition. It should keep me out of mischief for a few days and pass the time waiting for my scan and surgeon appointment!!!
Blog 88 Friday 10th February 2012
I have booked my free sessions with Integrated Cancer Therapies reflexology, etc for next Monday. I found out about these free sessions via my nurse. Integrated Cancer Therapies is a registered charity for cancer sufferers that live in Northamptonshire, perfect!!! Two weeks time my final Chemotherapy session and then CT scan to check how successful the treatment has been.........here's hoping
I have to include this link in my blog as I want everyone to check it out from Cancer research UK please click on the link and watch the video.
Blog 87 Tuesday 7th February 2012
Today is the 11th Chemotherapy session and it is all boringly normal. I have been fitted with the Folfuser Fluorouracil to be infused over the next 46 hours. The warning on the bottle is very clear
"Cytotoxic - handle with care" I am extremely pleased that I have had the opportunity of the Chemotherapy, but boy, will I be glad when it is over! If I can give any advice, for anyone starting on this journey, for the first time, Don't fret, the sessions come around and go very quickly. You will get some or most of the side effects that you will read about, there's lots of information out there of how to deal with this. Take a loved one with you when attending appointments, especially the Oncologist. I got into the habit, of asking the Oncologist to write down the name of drugs, treatments and any information that I didn't understand. I then looked it up on line to understand fully. Stay active and positive...... I have got into a routine of regularly walking the dog, in different locations. I have started a small business, business plan, marketing plan, website, flyer's, business cards, targeting business. All the information is available on-line or library. I have also started to decorate the hallway !!!!! (I was pressurised to do that).
But above all remember each session is doing you good......................and there is a lot of available support out there, write a blog its great hearing from others, join Twitter............... I have learnt there is a lot of people out there far worst of than me.......................
"Cytotoxic - handle with care" I am extremely pleased that I have had the opportunity of the Chemotherapy, but boy, will I be glad when it is over! If I can give any advice, for anyone starting on this journey, for the first time, Don't fret, the sessions come around and go very quickly. You will get some or most of the side effects that you will read about, there's lots of information out there of how to deal with this. Take a loved one with you when attending appointments, especially the Oncologist. I got into the habit, of asking the Oncologist to write down the name of drugs, treatments and any information that I didn't understand. I then looked it up on line to understand fully. Stay active and positive...... I have got into a routine of regularly walking the dog, in different locations. I have started a small business, business plan, marketing plan, website, flyer's, business cards, targeting business. All the information is available on-line or library. I have also started to decorate the hallway !!!!! (I was pressurised to do that).
But above all remember each session is doing you good......................and there is a lot of available support out there, write a blog its great hearing from others, join Twitter............... I have learnt there is a lot of people out there far worst of than me.......................
Blog 86 Saturday 4th February 2012
I have recently discovered that anyone suffering from cancer who live in Northamptonshire, can receive free of charge integrated cancer therapy's such as aromatherapy, therapeutic massage, therapeutic touch, reflexology, hypnotherapy and tai chi (chi kung)
Integrated Cancer Therapies is a registered charity specialising in delivering complementary therapy to people with cancer living in Northamptonshire. They are a team of fully qualified and insured therapists with over 25 years collective experience in treating cancer patients. Their purpose is to improve the well-being of people with cancer by providing holistic care using evidence based complementary therapies. The delivery of this service will rely upon charitable funding and voluntary donations. I know where I will be next week !!!! I am secretly hoping that the therapy's will help with the numbness experienced across my left side chest following my lung operation and the numbness in my feet from the Oxaliplatin drug. I shall also ask about the Tinnitus in my ears since the Oxaliplatin drug.................... Or I shall just lay back and enjoy !!! I am hoping by highlighting this service that, maybe, you will have a similar service where you live, for you, or any cancer sufferer that you may know. I'm sure this cannot be unique to Northamptonshire please let me know if you have a similar service, or any other service for cancer sufferers in your City. I will then include any in my blog to assist others. I am starting my 11th and second to last Chemotherapy session next week 7th Feb until 10th Feb. Bloods will be taken on the 6th Feb. Its bitterly cold in Northamptonshire today, last night was reported as minus -10degrees, and its currently snowing roll on summer!!!!!!!!!!
Wendy's Blog
I cannot believe that with all the vitamins and berocca that I have been taking to ward off all sickness, so John is not exposed to any bugs, and what happens I get sick! I am full of cold, sneezing, runny eyes, runny nose, cold and miserable. I just hope that John does not get infected, it would be very cruel if he gets sick when he only has two more chemo's to go.
I have a very busy week next week, visits to Birmingham, Grimsby, Manchester and London and then 4 days off the week after next, what to do, it would be nice to get away but John has been stripping the hall way to decorate so I imagine that is what we will be doing!
He likes to potter about the house keeping himself busy. I am pleased that he does not work because when it gets a bit much he can sleep or just relax. Let us just hope that he doesn't catch what I have got.
Wendy's Blog
I cannot believe that with all the vitamins and berocca that I have been taking to ward off all sickness, so John is not exposed to any bugs, and what happens I get sick! I am full of cold, sneezing, runny eyes, runny nose, cold and miserable. I just hope that John does not get infected, it would be very cruel if he gets sick when he only has two more chemo's to go.
I have a very busy week next week, visits to Birmingham, Grimsby, Manchester and London and then 4 days off the week after next, what to do, it would be nice to get away but John has been stripping the hall way to decorate so I imagine that is what we will be doing!
He likes to potter about the house keeping himself busy. I am pleased that he does not work because when it gets a bit much he can sleep or just relax. Let us just hope that he doesn't catch what I have got.
Blog 85 Monday 30 January 2012
The trouble with Chemotherapy is that you don't actually know the good its doing, you can only experience the bad through the side effects and symptoms. I can actually feel the harm the drugs are doing to my body, through loss of feeling in my hands and feet, tinnitus in my ears nausea, headaches and constant nose bleeds, but the hope is that the drugs are fighting for you. My friend Michael whom I met in the Spire Leicester hospital, has been through three bouts of 12 sessions of chemotherapy some few years apart, but each time, the cancer has returned in different parts of his body. But It is also about prolonging ones life, which has worked for Michael, he is a very pleasant man with a good sense of humour and is always encouraging and supportive when discussing our situation. I have realised that there are lots of campaigns out there trying to get the message across regarding early diagnosis of cancer it was on the 5 o'clock news today, it is always being featured in the Sunday Papers as individual personal stories. Its in various magazines Corporate and others and as featured in my blog on Saturday its even in the retired policemans magazine !!!! It sounds as if that could be turned into one of those jokes about "The Policemans Ball"
I have often wondered if my years in the Police Service may have contributed to my contracting cancer, eating take away junk on almost every nightshift, quick changeover shifts very little or no sleep with a few pints in between, long hours in police vans and cars, the basic lethargy of the meandering courts system, and the daily stress of witnesing our fellow man destroying himself and others.
I have often wondered if my years in the Police Service may have contributed to my contracting cancer, eating take away junk on almost every nightshift, quick changeover shifts very little or no sleep with a few pints in between, long hours in police vans and cars, the basic lethargy of the meandering courts system, and the daily stress of witnesing our fellow man destroying himself and others.
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