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Blog 150 Monday 18th February 2013

It's been Seven days since my CT scan and today at 2pm GMT my Oncologist Craig Macmillan will give me the results. I am extremely apprehensive as the previous two scans has resulted in surgery. It's been a long mentally challenging week but finally......

Update 20.35 GMT  18/02/2013

Finally .............I have been told the CT scan was clear wow ! thankyou.  I'm also on a six month scan regime now August seems a long way away but it won't rule my life thanks for the prayers and well wishes ..

 Check out the stats :(

http://www.bowelcanceruk.org.uk/resources/bowel-cancer-facts-figures/

Blog 149 Monday 11th February 2013

Thick snow overnight and my scan today. Thankfully the scan is later on today at 4.30pm. My eldest son Jonathan was coming through from Oxfordshire to support me, but, due to the snow I sent a text to put him off. Nevertheless as I suspected, he turned up anyway!! It was great to see him and have him with me travelling to Northampton and waiting, the time goes so much quicker. I spoke to the radiologist of my fears................. the last two scans have revealed cancer in my lungs. The radiologist is obviously not allowed to say anything, good or bad, which is probably for the best.

In my previous blog post, I mentioned that I had contacted the editor of the `Corby Eye', a local news read. I wanted a brief mention  to raise awareness of bowel cancer. To cut a long story short Kevin, the editor, has offered a fortnightly column !!!  brilliant ..................."Where to start" Mmmmmmmmm

I also came up with a fund raising plan which Kevin will help me with. My closer network will know that I draw ..Pastel to be exact..... and have recently exhibited some of my work in a local gallery. The plan is to auction my works in aid of Bowel Cancer UK the sort of work that will be exhibited is the originals of :-
 


I'm hoping this is not a hair brain idea but if I can raise some cash for Bowel Cancer UK through selling some of my original pastels thats gotta be good, details have yet to be arranged but I'm quite looking forward to it.
      

Blog 148 Tuesday 5th February 2013

Its been a bit of a mixed bag lately. My CT scan next week has dominated my thoughts and then the agonising wait for the results the following week. Luckily I have my youngest son Jarrod visiting today for a few days together with his lovely girlfriend Vici. The visit will take my mind off.

Being optimistic, I have also taken personal advice on my pension situation  and what I can do for the best in the future. I also have got the editor of "The Corby Eye" visiting tomorrow with the intention  of including Cancer awareness in his fortnightly newspaper. The Corby Eye is a local paper and concentrates on local people, events and good news in and around Corby.  Read More http://en.calameo.com/read/001364785f8daa9cf866b

Its all about raising awareness
 
Bowel Cancer UK
"About a quarter of bowel cancer patients in England are only diagnosed with the disease after an emergency admission to hospital, according to research published
This equates to about 8,000 out of 31,000 patients admitted in a 12-month period."
 
 
 
 
As I said its been a bit of a mixed bag

Blog 147 Monday 28th January 2013

Whilst sympathising with me, people close to me, often say that I must have come into contact with something in the past. Something, that has caused my cancer, especially reflecting also on my first wife's lost battle with cancer last year.  My life style was a lot different from my siblings. I chose a very stressful  career path.  I dropped everything and lived on different continents. I was not particularly good at being very active or frequently exercising and never really worried about a healthy diet. All the bad things that cancer awareness campaigns warn us about............................ I also believe that this disease is dormant in us all and any or all of the above is a trigger..........early diagnosis is the key

 
An article caught my eye
 
I have recently blogged that I was unhappy at the news from my oncologist that I would not necessarily be given further chemotherapy I was originally diagnosed with stage II colon cancer so seeing the following statistics sort of helped, quite bazaar...........................
 
Quote
"Analysis of data from patients treated outside clinical trials suggests that adjuvant chemotherapy for stage II colon cancer provides less than a 3% absolute improvement in survival at 5 years. This is remarkably close to the small degree of benefit suggested by controlled studies. An overview of the data suggests that surgery alone cures approximately 75% of stage II patients. Between 20% and 25% of patients experience disease recurrence despite surgery and adjuvant chemotherapy, whereas adjuvant chemotherapy cures between 1% and 6%. In stage III patients, the benefit of adjuvant therapy is greater overall. The extent of benefit relates to tumor grade, invasion, and nodal involvement."
 
Unfortunately I fell into the 20%-25% of patients that experience recurrence. Oncologists do not take the real life problems of the chemotherapy side effects lightly.
 
My next CT scan date 15th February bring it on.....................................................I felt really good today!!

Blog 146 Saturday 19th January 2013

Today is a year since Janice died of cancer after a long battle. Janice, my first wife and mother of my three sons was too far advanced to be saved by surgery. My sons have all dealt with the grieving differently over this year and have managed to cope in their own way our thoughts are now with them.

I have received my scan appointment for February, at least I have a date to work towards..............

Blog 145 Friday 11th January 2013


I would like to share two interesting articles I found in "The Lancet". Volume 381 January 2013

My altered self: cancer 

Felicia Marie Knaul discovered she had breast cancer at the age of 41 years while living in Mexico. Although a terrible predicament to be in, she acknowledges the metaphorical abyss that she fell into was less deep and less dark than that for many women with the same disease who are socially and economically less fortunate than herself. The rates of deaths from breast cancer have increased steadily in Mexico since 1955, mainly because the disease is not detected and treated in time among low-income groups.

Read more :http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(13)60035-5/fulltext?elsca1=ETOC-LANCET&elsca2=email&elsca3=E24A35F

And ......................

Caroline Dive: leader in translational oncology research

Professor Caroline Dive leads the Clinical and Experimental Pharmacology Group at the Cancer Research UK Paterson Institute for Cancer Research in Manchester. Her team carry out lab studies and early clinical research into new cancer drugs. Professor Dive also carries out important research into drug resistance in bowel cancer.

Oncology (from the Ancient Greek onkos (ὄγκος), meaning bulk, mass, or tumor, and the suffix -logy (-λογία), meaning "study of") is a branch of medicine that deals with cancer. A medical professional who practices oncology is an oncologist.

This report gives a very good view on the current research going into Biomarkers.

Biomarkers directly measure protein levels in tumour tissue which allows for effective drug selection.
Biomarker tests will help doctors determine whether patients carry the protein in their cancer, will help to judge the best medicine for the patients disease and wether the patient will respond to the cancer drug treatments under consideration. This will benefit patients in two ways. Firstly biomarker testing identifies whether the treatment will be effective and secondly, it can help determine whether the patient is also likely to suffer side-effects.

Read More: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(13)60036-7/fulltext?elsca1=ETOC-LANCET&elsca2=email&elsca3=E24A35F#
 
I have recently blogged that my oncologist has stated that I will not necessarily be given chemotherapy again as tumours returned to my lungs shortly after 6 months of chemotherapy...........obviously it didnt work. I'm sure the above research will not benefit me but how fantastic to have research moving at such a great pace...................
 

Blog 144 Thursday 3rd January 2013

I seem to be sitting waiting for the next scan appointment letter to hit the front door mat. I hate this feeling of waiting and wonder why I am doing it. Since the chemotherapy didn't work and the cancer returned to my lung, things seem to have changed within. I have changed. My outlook has changed and I am desperately trying to................. snap out of it,  My health has also changed. I have become susceptible to colds, flu and chest infections. I am currently on strong anti-biotics 500mg Clarthromycin  for flu like symptoms that have manifested into a chest infection. These symptoms have been with me since my lung operation at the end of October.It has been particularly bad over Christmas and new year.  I have previously blogged about a product I was taking whilst on Chemo, "Seven Seas" Immune Defence tablets they were fantastic at altering my weekly blood results when the chemo was intent on destroying the blood cells. Alas, I stopped taking these at the end of chemotherapy and now wonder why............. they are definitely back on my shopping list!!!  

We must not loose sight of the good work that the scientists are doing in the fight against cancer
 
World first as scientists create cancer-killing cells that can be injected into patients

Read more: http://www.dailymail.co.uk/health/article-2256711/World-scientists-create-cancer-killing-cells-injected-patients.html#ixzz2GxJ4HcUZ

Of course this type of article will provoke the sceptics, but I welcome any form of advance when it comes to combating cancer.

When cancer's found at an early stage, treatment is often easier and more likely to be successful. So finding cancer sooner rather than later can make a real difference.
(click on this link)
SIGNS AND SYMPTOMS OF CANCER

Blog 143 Tuesday 25th December 2012



Taken from last years blog, sorry, Ive been a bit lazy with the blog lately. I am however, optimistic that 2013 will be a great year. Happy New Year to all ..........................

Please pass on the message to all your network of family and friends as a new years resolution to checkout the Bowel Cancer UK website

http://www.bowelcanceruk.org.uk/understanding-bowel-cancer/

A good article in the "Mail on Sunday" review newspaper this week, entitled "The Chemo-Proof Christmas Dinner" by Jim Fisher. Jim is a former MasterChef semi finalist and highlights the problems of eating for cancer patients........... for thousands of of us cancer patients, suffering the effects of chemotherapy, the thoughts of the Christmas Dinner, Christmas pud, mince pies and other "Goodies" can be quite daunting, Lifesaving chemotherapy can trigger debilitating severe side effects such as nausea, reflux, and mouth ulcers, also oral mucosities which causes an inflammation of the inside of the mouth making eating very painful. Chemotherapy drugs also wreck taste buds, all this occurs due to the strain placed on the immune system during Chemotherapy. Jim Fisher's late mother, Sylvia, suffered a rare form of cancer and Jim realised, as a chef, he could do something about some of the side effects suffered by his mother.

In my case, I had regularly suffered  the pain associated with reflux, and often feel quite nausea's, I had  mouth ulcers and found it difficult sometimes to swallow cold drinks, due to a feeling that my throat was inflamed. Food often tastes metallic to me and I had lost my appetite for the hot curry's I used to soooooo enjoy. Thoughts of weight loss were replaced with my weight steadily increasing to the heaviest I have ever been, I believe due to the steroids that I am prescribed.

Jim Fisher now runs a cooking school in France, and has researched foods for their comforting and healing properties. Jim says " Food is more than about having something to eat. It takes you through the bad times. Going through chemo is rotten enough as it is, but it's often especially bad at Christmas.

Jim Fisher has created a festive menu for those especially having chemotherapy " I hope these recipes make it a merrier Christmas for those battling cancer" says Jim.................. www.mailonline.co.uk/chemorecipes

Blog 142 Friday 7th December 2012

 A letter recently arrived from our daughters school. At first I thought it a "normal" school communication. The letter informed us that  the school council has planned a cake sale for today Friday 7th December. Our  daughter `Hope' 10yrs, enjoys making cakes to sell at school for these events, so I read on, the cakes would be sold for 20p each. The money raised would be divided between two charities Macmillan Nurses and Wish Upon a Star  

Why these two charities ? .........both  were involved with Ronaldas Janovic 9 years, who died of cancer in October. Ronaldas was a pupil in our daughters school. Hope made her cakes last night taking a lot of pride in what she was doing and carefully carried them to school this morning................

Macmillan Nurses, for many people affected by cancer, are a valued and trusted source of expert information, advice and support - free of charge. As of December 2011, there were 3,707 Macmillan nurse posts across the UK, both in hospitals and in the community.

Wish Upon a Star aim is to simply make magical memories for a Wish child and their family to remember for a lifetime. By granting a Wish, this enables the family to have a truly amazing time forgetting about hospital routines, doctor's appointments and the gruelling treatments that have become a daily occurrence and allowing the whole family to smile, laugh and enjoy life!




 
Unfortunately you will not get to try one of these scrumptious cakes (nor did I) but you can donate to the charities by clicking on the links above
 
 

Blog 141 Friday 23rd November 2012

I would like to rewind back to Blog 111 Wednesday 30th May 2012 I mentioned a very brave lady Melanie Swan-Horton I quoted  :

" A mother of two from Norfolk, took on a high protein diet and had a dramatic weight loss, size 16 to dress size 10 enduring hours in the gym and unfortunately putting her side effects down to her diet regime and gym. Mel has been diagnosed with Bowel Cancer the actual reason for her weight loss. Mel has had chemotherapy and bowel cancer operation but nothing more can be done the cancer has spread to liver and lungs...........................this very brave lady is terminal." 

I had the all time highest amount of "hits" on this blog as a result. I now need to bring the sad news......................Mel has lost her battle against cancer, her funeral is at 10.15 on November 26th 2012 at St Faiths in Norwich. Mel arranged the funeral in advance and requested family flowers only and asked for donations to www.big-c.co.uk

It appears that what kept Mel going in her last months, was her  `Bucket List' things that she wanted to do......... Mel did not complete her bucket list....... Mel's aim was to raise awareness. This should be an inspiration to us all there are many lives to be saved out there .................. Please bring Bowel Cancer awareness to everyone's attention in your network. ...................

Bowel Cancer Awareness
  1. Around 34,000 people are diagnosed with bowel cancer in England every year and around 13,200 people die from the disease
  2. Over 93% of bowel cancer patients diagnosed with the earliest stage of disease survive five years compared with less than 7% of those diagnosed with the advanced disease
  3. An estimated 1,700 deaths from bowel cancer could be avoided each year if survival rates matched the best in Europe



     

Blog 140 Tuesday 13th November 2012


Superstitious? no not me. I was born on the 13th. I have flown longhaul to South Africa on Friday 13th and returned a month later on Friday the 13th. Unfortunately it was the 13th May last year that revealed the cancer had spread to my lungs, otherwise i love the 13th!!!
  
Wendy often says "I wish I could take away your pain " or "I wish I could share this burden and fight this battle with you"..............a previous story from the Sydney Telegraph takes me to a similar plight from Vashti Whitfield "I couldnt fight the battle for him" this concerns Andy Whitfield.

In 2009, Andy landed the lead role in the TV series Spartacus: Blood and Sand.  Andy was diagnosed with stage four non-Hodgkin lymphoma and lost the battle in 2011. I watched every episode of this series, which was  full of action and Andy was a brilliant actor. Vashti, lives in Sydney and has a very interesting blog http://www.maybemcqueen.com/category/blog/  We miss Australia and had it not been for the bowel cancer would still be there I'm sure. Today, marks the first total solar eclipse in Northern Queensland the last until 2028..........A time of change

 

Blog 139 Sunday 11 November 2012

Wendy's Blog

I made the Christmas Cake today, and while doing so I could not help comparing the making of it to life. As I weighed, chopped, boiled and stirred the ingredients, I compared it to different events in our lives. We have had a lot of horrible things happen over the last few years, but mixed in with the horrible has been the good times as well.

It is the same as the ingredients for the cake, a glace cherry on it's own is very sweet, raw egg can make you sick, brandy burns your throat, and flour is so dry. But mix them together and you get a cake. Now the end product can turn out very differently as well, you can burn it, the cake can flop, or it can be perfect. It is up to us to take those ingredients that life throws at us and turn it into something to be proud of, a life worth living.

John's cancer is an ingredient, a part of our lives and no matter which way it shapes us we will draw strength from it and survive!

Blog 138 Sunday 4th November 2012

Just a very quick blog I have not been offered any further Chemotherapy by my oncologist, it didn't work the first time so why should it work again?

I was upset at first, then relieved that I wouldn't be going through the winter months enduring the Oxaliplatin and its side effects. I am however on a strict surveillance regime of a CT scan every 3 months.As my oncologist explained the "Harder" drugs for cancer are for established cancers and mine although returning on two occasions is not established.......................touch wood.............or pray......................  

Blog 137 Saturday 3rd November 2012

I am getting ready for my Oncologist appointment today at 11.15am in Northampton. I would like to thank the person that left a message on the blog which concerns the experimentation of screening for Bowel Cancer by blood tests.   Quote...............................................,

'Test for Bowl Cancer' Daily telegraph Sat. Nov 3rd 2012. Australia.

Australian scientists believe they are on the brink of delivering an affordable blood test to identify bowl cancer. At the moment, screening relies on people returning stool sample kits they receive in the mail. But less than 40 per cent of eligible Australians participate in the free federal government program.
The new blood test has been developed by biotech company Clinical Genomics in collaboration with the CSIRO and Flinders University in Adelaide.
It could be commercially available by late 2013. The blood test is currently being trialled on 3000 patients, with results detecting 73 per cent of cancers'.....................unquote
 
The current method is bowel cancer screening  In the UK only 50% of the test kits are returned !!! Come on you guys if you get a kit use it and send it back..................It could just save your life and prevent your family going through Hell if you are later diagnosed. 

Wendy's Blog

Talking about putting family through Hell, the only "Hell" that I have gone through is watching the man you love going through pain, uncertainty and psychological trauma and there is nothing I can do but support, hold and comfort. The other hell is trying to support a 10 year old who has seen and had things explained to her that no 10 year old should see and hear. We had her in counselling for a few months to try and cope with everything she has had thrown at her this year and it is comforting to know that she has "good coping" skills.

However I am lucky in that I manage a district and therefore I am classed as a home worker. I manage my diary 90% of the time and so I can schedule in John's appointments, and be with him when I can hear and see that he is not coping. My work has been incredibly supportive and has supported me when I need it. I say lucky because if I was office based it would be so much more difficult to offer this support and maybe we wouldn't have coped as well as we have. On the flip side there are times when the stress of  doing my job and dealing with setbacks with the cancer does get to the stage where you just want to walk away and hide. However that is not an option and I cope because John is my husband and the love of my life and I will be there for him as his crutch as he is there for me. Family is the key to overcoming adversity in your life.

Blog 136 Wednesday 31st October 2012

Happy Halloween!! We have just got back from a few days R&R in the Cairngorms National Park Scotland. I was not able to do much walking but the scenery was breathtaking, especially as most of the Cairngorms are snow capped. We had a lovely stay at the Dunallen Guest House in
Grantown-on-Spey. Thanks once again to our hosts David and Jayne.

After three lots of anti biotics my incisions are eventually healing nicely. On our return from Scotland a message had been left on the answer machine from my Oncologist Craig MacMillan. I have an appointment on Saturday 3rd November 2012. I am hoping that I am offered Chemotherapy for a second time. I previously blogged that Craig MacMillan, said that he would not necessarily offer me Chemo again, as it had not worked and I had suffered severe side effects. My Thoracic surgeon Mr Waller, reported that the tumours removed from my lung on this occasion, had been effected by the chemo but had continued to grow. With the return of the bowel cancer to my lung, I want the chemo even with the side effects. I am sure that Craig MacMillan is very concerned after the chemo drug Oxaliplatin  that gave me the Tinnitus that has effected me so badly.

November is just around the corner. I will be so glad when this year is over. Its been a horrible year starting in January with the passing of my former wife, Janice, who was battling cancer, and which has devastated my sons, to the passing of my father in March. Chemotherapy with its side effects and further ops on my lungs after the cancer has returned. Bring on 2013 I am optimistic it will be better much better !!!!     

Blog 135 Tuesday 23rd October 2012

The consultation with Mr Waller the surgeon went better than first thought. Firstly a quick chest scan, which was clear, great now to the big man himself. Apparently I was on the wrong anti-biotics and told to discontinue these and take a new batch for the next 5 days ........that's it, .......all that worry for nothing....... I'm sure other cancer patients would agree, that when a strange phone call comes in from the hospital on a Sunday afternoon, or any day of the week come to that (Its happened to me twice and its always been bad news)   you do tend to worry........................ OK.................

Colonoscopy..................................check
Bowel surgery................................check
CT and MRI scans......................... check
Surgery on both lungs.....................check
Chemotherapy ................................check
CT & PET Scan...............................check
Surgery on left lung.........................check

Please talk to, your family or friends if you or they do not want a check list like my list above check out the Bowel Cancer UK website for signs and symptoms or more information.

http://www.bowelcanceruk.org.uk/

It is staggering that a quarter of bowel cancer sufferers are only diagnosed after being admitted to hospital as an emergency. Please read more by clicking on the link http://www.bowelcanceruk.org.uk/media-centre/latest-news/quarter-of-bowel-cancer-patients-only-diagnosed-after-an-emergency-admission/

England Scotland and Wales have a bowel cancer screening programme in place
"Compared with breast and cervical screening, bowel screening uptake is worryingly low, particularly among men. This study is an important reminder for people to complete their bowel screening kit when it arrives in the post."
Bowel cancer is the third most common cancer in the UK with more than 41,000 people diagnosed with the disease each year - over 100 people each day.
The bowel screening programme has only been fully up and running in England since 2010 but it is thought it will eventually save around 2,000 lives each year in

I am aware that this blog has been viewed in Fifty Four countries so far (Click Here to See) or on the Cluster Map) I would love to hear from others, especially if you have a screening programme in your country or have used the screening programme in your country.   

Blog 134 Monday 22nd October 2012

We have had a fantastic weekend celebrating my eldest son Jonathan and his wife Victoria's blessing of their marriage. Jonathan & Victoria were married on Christmas Eve 2011, they had brought their wedding plans forward, as Jonathan's mum Janice, my former wife of fourteen years, was battling cancer a battle she lost in January 2012. The wedding was originally planned for 20th October 2012 and that's what we did............it was a beautiful occasion.

On our return Sunday afternoon, I received  a strange phone call from the hospital.......Sunday afternoon.........?? results of the fluid removed from the recent absys that were sent for analysis have been returned and my surgeon, Mr Waller needs to speak to me ..................I confirmed I have an appointment tomorrow 23rd October, "Don't shoot the messenger" comes to mind. The very polite person was not able to give me any further information................we wait and try not to come up with any reasons and explanations prior to the consultation.............
 

Blog 133 Thursday 18th October 2012

What a week!! I had to go back to the hospital as an absis had formed under one of the incisions and was causing a lot of pain. The ward doctor had to open up the incision, firstly with a large needle and syringe, then with a swab. All the fluid was removed and a sample sent for analysis. because the infection is so bad I have been put on Flucloxacillin x 2 x 500mg x 4 times a day and Phenoxymethyl x 250mg x 4 times day as well as Tylex pain killers. I have been back to the local GP everyday this week for the wounds to be dressed. I haven't been able to sleep very well as my chest and back is still very painful. On my return to hospital I was sent straight back to the High Dependency Unit HDU as that was the only room available for the doctor. To my horror, I recognised the person in the only other bed "Colin". Colin was in the HDU with me after our operations two weeks ago. Colin had the same Op as me and was informed that there was a probability of 90% that the biopsy's taken from his lung were not cancerous. Colin was back in having surgery, on the very day I had returned and having his lung lower lobe removed............ the histology had returned cancerous cells ..............................I felt so sorry for Colin,  as on the ward we had discussed his operation and I felt good for him that all would probably be OK. Keep your chin up Colin Its all been found in good time which is great.!!

I must again make mention of my Medical Insurance "Simply Health" they have been wonderful a special thanks to "Julia" my contact at Simply Health. I have mentioned before how comforting it is to know that medically, everything will be taken care of when your world starts falling apart around you......................It is so nice to have a friendly voice and efficient person arranging everything.         

Blog 132 Sunday 14th October 2012

Today was my fathers birthday, he died earlier this year aged 93 years. My wife  Wendy had an opportunity to participate in the Perkins 5k Fun Run she did so in my fathers honour, and to raise money for the "The blind Veterans UK" . My father was an Eighth Army "Desert Rat"  in the second world war and a commander of a tank regiment. In later years he lost his sight and St Dunstans in Sussex helped him tremendously. St Dunstans is now known as The Blind Veterans UK . Wendy completed the fun run in brilliant sunshine this morning in Peterborough. There were hundreds of people running for different charities, you may donate to this fantastic cause HERE  

Under normal circumstances Wendy would have run for Bowel Cancer UK due to my condition, but it was poignant that this run was arranged on my fathers birthday

I was not able to run, as I only had my stitches out on Friday last week and I am still in a lot of pain. I am due to see the nurse again on Monday 15th October to assess the wounds and then an appointment with my Surgeon Mr Waller has been set for 23rd October. I will then enter the early warning treadmill of the scans.........................I will now be passed back to my Oncologist Mr Craig MacMillan. As I have more treatments and surgery, it appears to take longer to get over it .................or is it because I'm getting older??mmm

Blog 131 Sunday 7th October 2012

I am now back home, having been discharged from hospital with a big pack of pain relief. My first thoughts of this last week is that the pain was not so intense second time around due to the epidural

 

Although my epidural was placed much higher than shown in this image, the principle was the same.
The Epidural was in place to administer a prescribed dose of a drug called FENTANYL this drug is described as 50 to 100 times stronger than morphine. I was given morphine during my Bowel cancer operation and had hallucination's what was to happen now!!!!!! The following is taken from an information site

Thoracic Epidural Block height and intensity
"Typically, the effects of the epidural are noted below a specific level on the body (
dermatome). This level (the "block height") is chosen by the anaesthetist. The level is usually 3-4 dermatomes higher than the point of insertion. A very high insertion level may result in sparing of very low dermatomes. For example, a thoracic epidural may be performed for upper abdominal surgery, but may not have any effect on the perineum (area around the genitals) or bladder.[9] Nonetheless, giving very large volumes into the epidural space may spread the block both higher and lower.
The intensity of the block is determined by the concentration of local anaesthetic drugs used. For example, 15 ml 0.1% bupivacaine may provide good analgesia for a woman in labour, but would likely be insufficient for surgery. Conversely, 15 ml of 0.5% bupivacaine would provide a more intense block, likely sufficient for surgery. Since the volume used in each case is the same, the spread of drug, and hence the block height, is likely to be similar"................................so there you have it !



Knowing my fear of having a needle into my spinal column from our previous meeting, my anaesthetist, first put me under before inserting the epidural. My Surgeon Mr Waller said he would try to use the previous scars but would have to open them up further:-

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CHEST DRAIN
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THE LOWER SCAR IS THE WIDTH OF THE SURGEONS HAND AS HE HAD TO GET HIS HAND INSIDE MY DEFLATED LUNG





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A SPIRAL OF EPIDURAL TUBE EXITING MY SPINAL COLUMN SECURED IN PLACE BY SURGICAL CLINGWRAP!!





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The worst experience during this whole procedure was waking up after the Op, I was gasping for air and trying to say I couldn't breath !! The recovery staff had just removed all the tubes from my throat and having had my lung deflated for surgery, I needed to re-inflate it naturally. How was I to know!!!! I was asleep!! I was panicking, disorientated, and woozy. A very calm voice repeated several times "Just concentrate on breathing" I stopped panicking and started breathing.................  

The secondary tumour has now been removed from my lung and had been effected by the previous Chemotherapy. Some cells had died from the effects of the chemo, but the actual tumour had continued to grow. This is good news, as my Oncologist had previously stated that I would not necessarily be offered further Chemotherapy, "as it had not worked" now we know it had worked, in part, maybe I will get another opportunity.

This episode was a major disappointment to me, especially after the chemo. I am secretly hoping this tumour was a "stray" cell from my previous lung op a year ago and this is now the end.

I have had many well wishers and prayers offered from family and friends thank you all ,but I was especially very proud to have my 83 year old Mother "Phyllis" and wife Wendy by my side in hospital throughout the week helping me through. Jonathan and Hope were also fantastic in their support thank you all very much.

Again I have to thank all the staff at the Leicester Spire for a job well done especially Mr Waller Thoracic surgeon, Dr West Anesthetist, theatre staff and ward staff they were all brilliant........ 

Blog 130 Tuesday 2nd October 2012

Wendy's Blog

Last night John slept like a baby, I was the one sitting reading the paper at 2.00am in the morning in the lounge.... I don't know but today was not something I was looking forward too. We arrived at the hospital at 7.15am and was lead straight to the High Dependency Unit. The nurse arrived at about 7.45am and John was asked all sorts of questions and was given his nice hospital gown and pressure socks....very fetching.

We waited, and waited, the operation was originally due for 8.30 but after the anesthetist Dr West and Mr Waller, the surgeon saw John we realised that he was being put back till 11.00am. John climbed into bed and managed to sleep for awhile. I must say it wasn't long before the men in green surgical scrubs came to get him. After a hug and kiss I watched my husband being wheeled away. It is not nice knowingly letting him go so that someone can hurt him. We both know that there was no option, this operation needed to be done, but the pain to come that is what is scary!

It was a long and lonely wait. Jonathan (John's eldest son) had gone to our home to pick up John's mum who is staying with us this week, and to help get Hope off to school, but with the delay of the operation they decided to come to the hospital for about noon. It was then decided that they would then wait for Hope as John was not due back till about 2.30pm - 3.00pm. I had taken a book and sat in the lounge waiting! As for updates none is forthcoming until he is wheeled back from recovery... a really long wait!

He was brought back to me at 2.30pm, tubes coming out of his back (epidural), side (lung drain), nose (oxygen), catheter, and IV's in his hand and arm. He was still incredibly drowsy and in pain. The epidural is something John was offered last time but turned down. He regretted that decision and that is why he had it this time. I must say the pain was controlled very quickly and he was made comfortable a lot quicker than last year.

By the time his Mum, Jonathan and Hope arrived at the hospital, he was sitting up, drinking water and asking for something to eat and some tea. However he soon waned and needed to sleep. Sleep tight John, love you and glad that they got the tumour.

I have taken some photo's and we will get them up as soon as he is back home

 

Blog 129 Monday 1st October 2012

The day before surgery........ not sure how I am feeling, I remember the last time I went in to the same hospital for the same operation at the same time only 13 months ago. I have been given the same surgical scrub for pre operative washing and the same thoughts running through my head, only last time I had the chemotherapy, post Op, to fall back on.  I am an avid reader of anything that will assist others in the future concerning Bowel Cancer It was with interest that I read
 http://www.dailymail.co.uk/health/article-2201277/The-3D-scan-helping-surgeons-treat-inoperable-tumours.html A story about a very brave lady Heather Davies diagnosed with Bowel Cancer in such an awkward position she was told it was inoperable. Based along the same lines of my recent PET Scan (but without radio-activity). A CT scan and  an MRI Scan is put together and computer software transforms it into 3D images, giving the surgeon a far better platform to operate,  brilliant!!. When you read things like this you again realise there are persons far worse off than yourself..................Bag packed, starvation procedure in place, not long to go now and this alien will be removed.

HOPE'S BLOG!!!!!!!!!!!!!!!!!!!
 
I'm Really upset that my daddy is going into hospital again its been a while since I wrote on the blog. I'm typing really fast because I gotta go to bed soon. When daddy was given the ALL CLEAR for a little bit I thought it was forever but mummy said he still had to have checks and scans. Anyway I'm looking forward for tomorrow because we get KFC by the way that's a take away.
 
 
BYEEEEEEEEEEEEEEEEEEEEE!!!!!!!!!!!!!!!
 
 

Blog 128 Tuesday 25th September 2012

I have had a letter confirming my lung operation at the Leicester Spire Hospital for next week. I also have to attend at the hospital this Thursday for a Pre-Op assessment. Secondary Bowel cancer has once again taken hold in my left lung.  My Surgeon, Mr Waller will be performing a Broncoscopy as well as opening up the original scars to remove the tumour .....happy days. Hey! this time next week it will all be over and hopefully drawing on the morphine!!!!

Reading all the hospital literature that has come through the post, I get DeJa Vu  yes !! I've definitely  been here before Monday 18th July 2011  I can distincly remember,  I went through the mind debate of whether to have an Epidural or not. I didn't, my anaethetist listened and come up with some other blocker. I may have to this time as it is my surgeon's preffered method of analgesia  

 

Blog 127 Thursday 20th September 2012

At 19.30 this evening the phone rang and a very welcome voice followed.... Mr Waller my Thoracic surgeon  Mr Waller apologised for phoning so late.............I wouldn't of cared if it was midnight!!!! He explained his view of the scans, and position of the tumour. Mr Waller explained, he would have to open me up again in the same area as before, (Blog 17 Friday 22nd July) but he would have to make the incisions larger in order to get to the area concerned. Well at least I now have a date and have something to aim at !! If it's anything like last time, Wendy will clear her diary, and work from her laptop in the hospital. The mum's at Hopes school will rally around and offer to look after Hope, Pick up and drop off etc. Appointments to be cancelled. Nobody likes going in for an operation but I'm sure that other cancer sufferers will agree, I just want this thing out of my body and 2nd October when my operation is scheduled, cannot come soon enough !! 

Blog 126 Wednesday 19th September 2012

Hey, suddenly got lots of visits from Brazil on the blog was it something I said ? "Ola Brazil"

Back on blog 117 16th July 2012 I blogged that I had received an NHS Letter "Out of the Blue" from Kettering Radiography department for a CT Scan on 25th July 2012 . This Scan was out of sync for my cancer surveillance. I queried the letter with my bowel cancer specialist nurse Mark Kingston of Kettering hospital  and was told it is a mistake. It should read 25th July2013, I should not turn up and to rip the letter up.

I wrote on blog 117 "Everything happens for a reason"   I did not go for the scan,  as It would have deprived someone else of an appointment,  I had a scan arranged by my oncologist privately......the scan that found the latest tumour. I have read this letter several times since,  the scan was for an abdominal scan only and would not have identified the tumour in my lung !! I have since queried the surveillance regime I am on .................apparently the NHS surveillance regime is correct.

Sorry to sound morose, but I'm certain that Kettering Radiography dept would not have seen me on the 25th July 2013 it would have been too late in my case.................the NHS has done wonderful things for me and my family in the past, but if you believe you have been wrongly diagnosed, as I was, or you believe you have been incorrectly categorised for your treatment, do not hesitate to question... question... question. I believe from my first incorrect diagnosis to this recent episode I may have extended my life expectancy by at least 10 years.

 

Blog 125 Tuesday 18th September 2012

Yesterday, I waited all day for the phone to ring for the results of my PET scan ........................and waited, it was a long day.............I phoned the thoracic nurse specialist that had been assigned to me ...............answer phone......I phoned my oncologist...............answer phone.......eventually around 4.30pm I decided to take "Jack" our Labrador out for a walk, I took my mobile just in case.............nobody phoned. Whilst I was out, my oncologist had phoned and left a message to call straight back. In our country we call that sods law  otherwise known as Murphy's law.

Good news the PET Scan only revealed the tumour in my lung and nothing else phew !! now we know what we are dealing with its a referral back to Mr Waller who performed my original chest operation. I have had a few questions about the latest tumour in my lung. Yes, it is still Bowel Cancer that has travelled to the lungs. I will be asking the obvious question on my next consultation, "How much more of my lung can be removed"? unlike the liver the lung does not regenerate. I have already had five tumours removed a year ago. The other day someone said to me "Its lucky its bowel cancer and not lung cancer that lung cancer is terrible"!!!  ........MMMmmmmmmmmmm

Wendy's Blog

It was a great relief to get that phone call from the oncologist yesterday, the whole weekend in the back of our minds hung the thought of what the PET scan would reveal. It is really difficult to stay positive, today on the way to Norfolk (I do a lot of driving in my job) I was saying things like....positive thoughts only, a half full glass and not a half empty glass.....release the anger!!!!

I must admit I did feel calmer, so now I just need to continue floating those thoughts through my mind a bit more often.

Blog 124 Saturday 15th September 2012

John is Radio Active
The Pet scan itself was no different from any other full body scan I have had, but the preparation was mind boggling!!

In a nutshell, I was injected with a low dose of Radio Active Glucose. Fludeoxyglucose (FDG) The theory is, that your internal organs such as brain, liver, kidneys, muscles etc all use glucose to function. Cancer cells also use glucose in high concentration. The PET scanner uses x-ray technology with the radio active glucose (tracer) to create a 3D picture of the inside of my body. The images will highlight any cancerous cells.

I was not allowed to do any form of strenuous exercise for 24 hours   (hooray!!!)   prior to scanning, this is  in order to keep the uptake of glucose in muscle to a minimum. I also had to fast for six hours prior. On arrival at the unit the obvious previous history questions and consent forms then a cannula in my left arm. This is where the similarities change. A Nuclear Medicine Technologist then attached a metal canister, to the cannula,  that systematically released small doses of the FDG whilst he also injected saline. I then had to totally rest for an hour. No talking, No walking. I am now Radio Active and must not come into close contact with pregnant woman or children in the next 6 hours. Although the first is not a problem I do have a ten year old daughter.

After an hour, I was escorted to a specific toilet with the above, " Radio Active" signs on the door and told to empty my bladder. I was then escorted back to the scanner, via a separate door and led into the machine.............................The scan will reveal the tumour already found, in my left lung the hope is that nothing else will be discovered .............once again we wait for the results. My Oncologist will then decide on what course of action, If its just the lung tumour its back to the Leicester Spire hospital and my surgeon Mr Waller.       

Blog 123 Thursday 13th September 2012

I have an emergency PET Scan tomorrow 14th September at GMT 15.50 I have been told to fast for 6 hours prior and arrive one hour before in order to receive a radio active injection, then lay back for an hour before the scan begins which should last about an hour phew!!!!!  My newly acquired tumour in my lung will soon be history!!!!!!!!!!!

A year ago today via blog 33, I wrote..................

"It has been two years, almost to the day, that a colonoscopy revealed my colon cancer in advanced stages. It has been four months to the day that a CT scan revealed polyp's on my lungs had changed in size and increased in number. Since then Ive been pushed, prodded, injected, anaesthetised, sedated, incised, clamped, stapled stitched and sewn. I have eleven incision scars across my torso, soon to be twelve. Ive attended Nine different medical establishments on two different continents for various procedures. I have seen more of my internal organs via video, photos and on surgeons VDU monitors than I have ever seen of my back, (for instance) ................but in all this time I have never felt ill.............. never felt as if I'm sick .........never felt unwell with the cancer, probably because I was lucky and caught it in time...............................".


I can now add to the above list a further two incisions soon to be five more and having been slowly poisoned with the toxic chemotherapy drugs, and to become "radio active" during my next PET Scan, I have been told I must not come into contact with children or pregnant woman for 6 hours after the PET Scan.

I have never felt unwell except with the chemotherapy.  With the latest Tumour now discovered, growing in my left lung. I am frustrated...................................... if I had left it to the NHS again, I would not have had a CT scan until July 2013, and this current tumour would probably have been my death sentence,  It is only because I have had the benefit of private health care that this latest tumour has been discovered so early, a CT scan ordered by the private health care Oncologist a full 10 months prior to the NHS Scan !

Sorry if I sound a bit tetchy today, but originally I had a mis - diagnosis by an NHS Doctor in Worthing of Irritable Bowel Syndrome all those years ago and it later took an Australian doctor to find my bowel cancer.

After this last episode I feel let down by the NHS thank goodness for private health care, even if it only prolongs my life by another  couple of years, it will be two more years with my family. Thank you to the family and friends for all the prayers the Lord is truly looking after me..................  

Blog 122 Monday 10th September 2012

Today, my Oncologist, gave me the devastating result of my recent CT Scan., a tumour has once again, invaded my left lung,  If you have read my blog previously, you may remember that in July 2011, I had an operation on both lungs to remove a total of 5 tumours. The operation was reported a success. A CT Scan was ordered after the conclusion of Chemotherapy in March of this year, and via blog 97, I reported that I had been given the "all clear".

The euphoria of "beating" cancer has been short lived. Now, I find myself being sent for a  PET Scan  (Positron Emission Tomography) possibly this Friday. A PET scan gives a higher resolution imaging and is used in conjunction with the CT for a much more detailed picture. (please click on the link for explanation) My lung surgeon Mr Waller of the Spire Hospital in Leicester, has been contacted by oncologist Craig MacMillan in preparation for surgery. I telephoned the Medical Insurance company "Simply Health" to keep them updated.....my sons, and my mother ...............and it all starts again.

I was foolish thinking that I could beat bowel cancer in such a short time. I was once told that the first five years are the longest. You are not officially a "Survivor" until after five years. I was confident that I had beaten the disease after the Chemotherapy, instead I took it on holiday to France with me..............................I am still fighting it and keeping upbeat and positive. Wendy is, as always very supportive, but I can see it is hurting her, especially after the news that I will not necessarily be offered Chemotherapy for a second time............as it didn't work, I wonder what else we have in the ...................arse-nal  !!!!!!! There is also lots of help for the loved ones of cancer patients MacMillan Cancer support I have been in contact with MacMillan when I was first diagnosed and they are very informative and helpful.


Wendy's Blog

The first time we found out that John had bowel cancer, I treated it the same way I treat life.....let us live it and get on with it. No mental anguish!! The second time it hit me really hard, I think it took me three weeks to once again face it head on, deal with it and get on with life. Today......I don't know? How do I support John, Hope and the boys....how do we cope? I know that this time it will take awhile but we will get over it and get on with life. I love my husband and my "kids" and I will do anything to protect them.........

Blog 121 Thursday 6th September 2012

Sad I know, but one of my favourite daily reads is the Mail On Line. You can check out what you want without being subject to the normal daily newspaper sensationalism.

Anyone who has read my blog before, will know that I sometimes refer to articles taken from the `Mail On Line' and today will be no different. Two articles has hit home with me, `He didn't need to die':  A wife's harrowing story after her husband was diagnosed with IBS and died of Bowel Cancer  and the second article Bowel Cancer soars by 120% among the under Thirties  an older article but goes to show Bowel Cancer is not only an older persons disease, and under thirties can be wrongly diagnosed due to their age.

Both of these articles caught my eye, firstly because I was diagnosed with IBS (Irritable Bowel Syndrome) and later found I had advanced stage Bowel Cancer.The symptoms are very similar and can easily be mistaken. Giles Cowley 41 the unfortunate person in the first article had a stressful job and lifestyle. Although I was 45 my Job was stressful and may not of been eating properly. My GP then diagnosed IBS without any further tests it was in fact the start of Bowel Cancer.

The second article caught my eye because,  as with the first article and IBS if you do not fit the profile of a person that is in the age group of persons likely to be effected by bowel cancer (Over 50) then your GP may diagnose wrongly. Our government still only screens for Bowel Cancer when you reach 60 in England

Who is eligible for screening?
If you are aged:
  • 60-69 in England
  • 60-74 in Wales
  • 60-71 in Northern Ireland
  • 50-74 in Scotland
By taking some simple steps to improve your diet and taking regular exercise can help reduce your risk of bowel cancer. So it is important to:
    Diet & Exercise

Blog 120 Monday 27th August 2012

My experience of the bowel cancer and the treatment given to me, never seem to leave my thoughts, it's always there, somehow in the background, always in my mind.   The follow up treatment is also never very far away. I have received another appointment for a further CT Scan at Northampton general hospital for Monday 3rd September 2012. This scan has been ordered by my oncologist for the Chest, Abdomen and Pelvis. This scan is no different from the others I have had, but is one of a long line of scans and is part of my "early warning system" just in case !! I am thankful for this system as it gives me peace of mind......................for a while.................................... but is nerve racking waiting for the results.    

Blog 119 Wednesday 15th August 2012

Just got back from the North West Brittany Coast of France, having stayed in a beach cottage owned by my good (Old) police chum friend Adrian. Adrian is now a resident of France and lives about an hour away where he tends his Gites. The Breton Gites are also available for summer lets. At the Beach Cottage in Erdeven lots of sun, fishing and snorkelling. Pernod and red wine !! brilliant.

Having followed my plight on this blog, Adrian admitted that he had the opportunity of supplying samples for the French version of the bowel cancer screening test but had declined. In France the government send out the test screening kits at age 50 years the same as Scotland . In England our government only send them out at 60 years. My symptoms started at age 45 years and I would have been dead at  age 55 years had I not caught the bowel cancer in time. I have urged Adrian to complete the test as I would do with anyone receiving the test through the post. If, like me  you are not of the age to receive the kits and believe you have any of the bowel cancer symptoms  do not hesitate to contact your GP or there is a load of information on the Bowel Cancer UK website. 

Quite uncanny, when I got back from France an email was waiting for me from another "Old" police chum Iain, with an article attached from the recent NARPO magazine (National Association of Retired Police Officers) It was exactly what I was talking to Adrian about

Bowel Cancer

"DO THE CHECKS"


"Well I served for 33 years finishing up in Cleveland Constabulary and at 60 years of
age my wife and myself started supplying samples to the bowel cancer screening
program which you do every 2 years.This year I did my samples about the
same time I was reading the article "Bowel Cancer" by Geoff Stuttaford and they
found a trace in my samples and within 6 weeks I had seen all the nurses and
specialists and had the required operation and the area was removed.

I am back to my fit and healthy lifestyle and hope that I get the birthday card from the
Queen in the future. For those who sit thinking I am fit & healthy
please note I had no ill effects or condition to indicate anything was wrong, I was
recently talking to a friend who sent for the sample envelope 5 years ago and stated
it's in the drawer somewhere. Join the screening program it's better to
know and sort it and live a long life".
R M Coverdale MBE
ex PC 154D_ _J
Visit our website at www.narpo.org • Email hq@narpo.org • Telephone 01924 362 166

Blog 118 Monday 30th July 2012

Early diagnosis of bowel cancer saves lives........I am ever thankful to my wife Wendy who kept nagging me to go back to the doctors when my symptoms of diarrhoea didn't go away, I was diagnosed with Bowel Cancer at an advanced stage and ever thankful to the doctors surgeons and nurses who gave me the second chance.........................you can get lots of information from                 www.bowelcanceruk.org.uk 

 Information & Support freephone:                      0800 8403540

East Midlands Cancer Network has asked Bowel Cancer UK for help in contacting local colon or rectal cancer survivors. The Cancer Network is a useful resource for local information for cancer patients, their friends and relatives and Health Professionals from the East Midlands area. East Midland Cancer Network understands that many patients following treatment for a colon or rectal cancer face many and varied challenges which may not be met by their local hospital team.
To this end they are planning to make a DVD which will be handed to patients and carers six weeks after their treatment is completed. The Cancer Network would like to interview 5 patients about their experiences.
In addition, they are also looking to film 5 patients to share these experiences. .In my attempts to spread the word Bowel Cancer UK has asked if I would be a willing participant to be interviewed for a DVD and filmed whilst sharing experiences. WELL I recently jumped at the chance of being interviewed "ON AIR" for Northampton Radio and being photographed for the local paper which highlighted this blog.....................so if I can help persons embarking on the rehabilitation period after treatment then bring it on.

 

Blog 117 Monday 16th July 2012

OK, I need to make some sense of my recent ramblings, so a short synopsis . I developed a severe case of Tinnitus  on my fourth chemotherapy session back in 2011.  I was immediately taken off the chemo drug Oxaliplatin as this was believed to be the cause. My Oncologist Craig Macmillan left notes for my GP that if the Tinnitus does not get better two months after my chemo, I should be referred to an Otolaryngology or ENT Specialist for further investigation.
(Synopsis John synopsis !!!!)

Ok, I had an MRI Scan which was clear of any focal abnormality ie metastases or acoustic neuroma so that's good !!!!! but I have been told that the MRI scan picked up that I have generalised cerebral atrophy (shrinking of the brain) with periventricular ischemic change.

Although this is not uncommon in the older person and is associated with dementia, but in my case described as "possibly slightly more than might be expected in a patient of my age". (55 years) Today my GP gave me a copy of the Radiology report and suggested that I again contact my Oncologist. Just in case  I have also informed the medical insurance people................."Simply Health" they have been very good.......and continue to be sympathetic and supportive.

This is just too weird ! I have received an appointment from the NHS to attend a CT Scan on Wednesday 25th July 2012. It specifically mentions abdominal scan. I telephoned my bowel cancer specialist nurse and spoke with Mark Kingston as this scan is out of sync with what I have recently been told at El-Rabaa surgery. Mark made enquiries and reassured me that in fact this letter is a mistake by the radiology department and should in fact be 25th July 2013 I am a great believer in "everything happens for a reason" or am I just pessimistic. Mark told me to tear the letter up and not go......................